for those with psc
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Hi Denise,
Sorry I can’t help. Did you have any success in using the search function here?
Hi Ron,
Good to hear from you and no apologies are ever needed from you. I’ve been a carer since 2003 for my mum, then mum and my grandad, then mum and dad and now I am still carer for my mum, she has COPD. I know how hard it is being the carer and what it involves both mentally and phyisically and it is not an easy role to have to play. As Lainy so very rightly says, we are human and are not robots. Are you able to take any time for yourself and do what you want to do for yourself?
Good to hear from you again Ron and my best wishes to you and Lucile,
Gavin
ron…..no apology needed ever although, it is wonderful hearing from you. Caretakers deserve a ranking of five stars. It is a commitment none of us ever would want to pass on however; it does zap us, substantially. Ron, we need support too. Our feelings of frustration, fear, helplessness, tiredness, and anger are all jumbled up and they are very real. Don’t fear expressing it either, on this board, to a close friend, or a counselor. This is the time to reach out. Also, remember our Dr. Giles someone, we are immensely thrilled to have, on this site. You may send him an e-mail and you will be happily surprised by his response.
Best wishes coming your way,
MarionHello Ron and great to see you! Guess there is no way anyone can hide around here and I do know what you mean. I had a total meltdown about 3 weeks ago and honestly its the best thing that could have happened to me even though it scared us both a tad. I have really improved since that. Let out 4 1/2 years with a thunderstorm! We are only human not robots. My mom is 93 and has dementia and her world is so uncomplicated and peaceful. Sometimes I would give anything to be in her world for just an hour! But we are also resilient and bounce back quickly. Hope you are doing much better now, we missed you.
hi to everyone,
please forgive my absents, i have had my head buried in the sand the last few months trying to forget///after nearly 3 years of being a caregiver i figured i would try that approach, but it doesnt really help any, your thoughts are always there, so please except my apology…….my thoughts and prayers are with you all…….ron and lucilleDenise….if you don’t receive an answer, you might want to use the search function by entering PSC. Posters can be reached by personal e-mail when clicking on “E-mail”, left hand side, under the name. Just a thought because, at times threads become lost.
Best wishes,
Marion
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