Got my first infusion of Avastin today

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  • April 27, 2009 at 9:02 am #28172
    fisherds
    Member

    Has your doctor(s) discussed a TIPS (transjugular intrahepatic portosystemic stent-shunts) procedure with you?

    I don’t know your current level of health but from what I was told it can be a procedure for constant fluid build up – but has a possible increased chance of hepatic encephalopathy (unfiltered toxins not filtered by your liver messing with your brain).

    I’ve only needed a couple of paracentesis procedures (both of which were horrible for me – the area didn’t get numb enough so I felt the needle all too well in the deep tissue where they inserted it – the last one which was a CT guided one to check a pocket for infection I insisted on more sedation so I was basically unaware of it) so I didn’t need to consider the procedure yet but they had someone let me know it was available if the fluid issue became more of an issue.

    April 17, 2009 at 12:03 pm #28171
    tess
    Member

    We’re praying for you Sophie, and I hope that you enjoy every moment with your girls….. as I’m absolutely certain they will be loving their visit with you! Fingers crossed that the Avastin brings you some relief!

    Tess

    April 17, 2009 at 2:40 am #28170
    jclegg
    Member

    Sophie,
    Heather had the right word – you are amazing. I hope the avastan works for you and that you enjoy your visit with all the girls.

    God Bless,

    Joyce C.

    April 16, 2009 at 11:08 pm #28169
    heatherkp
    Member

    Sophie, you are amazing! What an awesome group of gals to hang out with! Have a super time…and know that you are in Em’s and my prayers!

    Love,
    Heather

    April 16, 2009 at 6:44 am #28168
    devoncat
    Spectator

    Sophie,
    I am so proud isnt the right word, impressed isnt either…i dont know but I feel so strong about your attitude and strength and determination. I hope the Avastan works for you and until you find out, enjoy girl time. I just had my sister here and boy was it a tonic.

    Hugs your way.
    Kris

    April 16, 2009 at 5:32 am #28167
    lainy
    Spectator

    Atta Girl! Can’t keep a good woman down. Enjoy all your girl time together.

    April 16, 2009 at 4:32 am #28166
    marions
    Moderator

    Sophie….What a great get-together. Can’t wait to hear all about it. Wishing for a wonderful time with everyone and especially, little Anna.
    Tons of hugs coming your way,
    Marion

    April 16, 2009 at 4:00 am #28165
    tiapatty
    Member

    Sophie,

    Sounds like a really great girls’ lovefest! I hope you are feeling fine so you can enjoy your time with them, little Anna must be growing by leaps and bounds.

    Patty

    April 16, 2009 at 3:14 am #2220
    sophie
    Member

    Hello Dearest Friends,

    Yesterday I had a paracentesis yielding 6.9 liters of fluid, and today I received my first infusion of Avastin with nothing else. It took about 90 minutes. So far I am feeling okay. I will keep all you brave warriors posted. I will still be drained once a week and Avastin every other week until oncologist knows if it is working. I am weighing myself everyday, and the past few weeks I have gained 2 or 3 sometimes 5 pounds of fluid a day. My doctors’s words, “If this works, it won’t cure you, but it could prolong your life and give you a better quality of life.” I mostly listen to you guys instead of him.

    My niece Stacy and her five year old Olivia are here from Reno until tomorrow, and having them here has done so much for my morale. Hollie from Truckee drives down tomorrow until Sunday. Sarah and baby Anna will come on Tuesday and stay a few days. I love my girls so much.

    Faith in Christ, and my prayers for all of you daily.
    Sophie

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