Happy Awareness Month!

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  • February 17, 2012 at 12:55 am #57138
    Eli
    Spectator

    Marion and Rick, right you are! I missed the link.

    February 16, 2012 at 5:12 pm #57137
    rick
    Keymaster

    Eli, I added our site to Wikipedia all the way back in 2005 or 2006. :)

    February 16, 2012 at 7:16 am #57136
    marions
    Moderator

    Eli…… USA version of Wikipedia does link to The Cholangiocarcinoma Foundation:
    The Cholangiocarcinoma Foundation: a resource for patients, friends, caregivers and loved ones of those affected by bile duct cancer.

    Hugs and love,
    Marion

    February 16, 2012 at 7:02 am #57135
    marions
    Moderator

    Hans…In German it is “Gallengangkrebs.” Have I told you, Ingmar Bergman and you – my Swedish heroes.
    Hugs and love,
    Marion

    February 16, 2012 at 12:21 am #57134
    lainy
    Spectator

    Hans, job well done and we thank you!!! I am sure Kris is so very proud of you too!

    February 15, 2012 at 11:51 pm #57133
    Eli
    Spectator

    Well done, Baron Bosse! :P

    The link to CC.org is a nice touch. It doesn’t exist in the English version.

    February 15, 2012 at 10:40 pm #57132
    monkeybutt
    Spectator

    For the last year I’ve been planning to expand the puny article on CC on the Swedish version of wikipedia (which is one of the few resourses that pop up when you google “gallgångscancer”). Well, It’s done, and I’m very happy with it.

    Praise me – I crave it!

    February 3, 2012 at 1:42 pm #57131
    lainy
    Spectator

    Liz, that is just great on many counts, kudos to your husband!
    2 days ago I met my new ONC as I am being watched for having had another rare Cancer called a GIST (size of a cantaloupe) that was removed 2 years ago. It reacts very much like CC. If you can believe me, following Teddy on that one! Anyway my GI guy has been treating me for 4 months now for ulcerated colitis. The GI keeps telling me that it is the worst case he has ever seen on someone my age. Anyhew, the ONC said, “Now you have to be very careful as U.C. can lead to other Gastro Cancers”. I hear more and more of this about U.C.
    So I am making this plea: If you have any continuous stomach problems such as bloat, not being able to eat much, pain, weight loss or gain, nausea don’t attribute them to other things such as meds, stress, or feel they will pass over, PLEASE go see a Gastro Doc!!!!! Please!

    February 3, 2012 at 3:52 am #57130
    kris00j
    Spectator

    Yay Liz’s hubby! Education and early detection are the best!!! Give him a thank you hug from me.

    Kris

    February 3, 2012 at 3:42 am #57129
    pamela
    Spectator

    Give that hubby a High 5. Awesome job.

    February 2, 2012 at 7:43 pm #57128
    marions
    Moderator

    Tiff… agree. We call this board: the club no one wants to belong to.
    Hugs and love,
    Marion

    February 2, 2012 at 7:39 pm #57127
    tiff1496
    Member

    Kris- I agree…I’m not happy any of us are here, but I am happy that we do have an awareness month.

    February 2, 2012 at 3:26 am #57126
    marions
    Moderator

    We have raised more than 400 doallars so far. Great for day one.

    February 2, 2012 at 2:55 am #57125
    rick
    Keymaster

    It’s also here on our video page. http://www.cholangiocarcinoma.org/media.htm (second row, 1st on the left)

    February 2, 2012 at 12:32 am #57124
    gavin
    Moderator

    Sara’s tv interview here. Just thought I would share this for those who might not have seen it before.

    http://www.youtube.com/watch?v=JxM6rrd3ZA8

    Hugs to all,

    Gavin

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