Haven’t been here in a while . . . . Update on me.

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  • August 27, 2013 at 1:13 am #75020
    lainy
    Spectator

    Dear Shari, I feel extremely honored to have been invited to your “pity party”, we all need them now and then. You have been through a lot and now more to come and I am so hoping for you to have good results. You remind me of the Timex watch, “takes a lick’in and keeps on tick’in”. Oops, you may be too young to know about Timex! I can’t give you any suggestions as Teddy never had Chemo but I can let you know I am thinking about you and wishing you the very best. And as usual please keep us posted!

    August 27, 2013 at 12:45 am #8822
    sharimay
    Member

    Hi everyone. Here I go again with chemo! I have a mediastinal lymph node and a retro peritoneal lymph node that lite up on my last PET scan. I started gemzar, oxaliplatin, and cetaximab today. Day 1 is gemzar and cetaximab Day 2 is oxaliplatin. A week off and start over. We are going to do 4 cycles (2 months) then another PET scan to see how the lymphs are responding. If I am responding the plan is a total of 12 cycles and oral maintenance.

    It has been 3 years since diagnosis. I have had 60 percent of my liver removed, 6 months of IV chemo, part of my right lung removed, 4 months of oral chemo, SBRT of my left upper lung, and now my third time with chemo.

    With chemo before I have never lost all of my hair, it just thinned. This time I might lose my hair. I had just grown it out, but was able to cut off 9 inches to donate to Pantene for wigs for cancer patients.

    I am having a harder time this go round. I have never felt ‘sick’ through all of this. I have continued to work full-time and refuse to let cancer define me. I just want to live to see my nieces and nephews and great nieces and nephews grow up. I made the choice not to have children, I just have two little furry puppies that melt my heart. I just want to live! Ok pity party is over! Just needed to say it out loud and get it off my chest in a safe place to people who understand.

    I am so lucky to have a great support system of family and friends to help me. Any suggestions on this go round send them my way.

    Thanks,
    Shari

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