Hello from Houston, first post, sister with Cholangio

Discussion Board › Forums › Introductions! › Hello from Houston, first post, sister with Cholangio

Viewing 15 posts - 1 through 15 (of 45 total)
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  • July 17, 2017 at 7:04 pm #95268
    iowagirl
    Member

    My sympathy to you for the loss of your sister. May you find comfort in good memories.

    Jullie

    July 17, 2017 at 3:08 am #95267
    mbachini
    Moderator

    Dear Jonas,

    I am so very sorry for the loss of your sister. Praying for peace, strength and comfort for you and your family.

    Melinda

    July 14, 2017 at 11:02 pm #95266
    spokanemom
    Spectator

    Dear Jonas,
    I am so sorry for the loss you and your family have experienced. I am so glad Myrna was surrounded by her loved ones.
    Victoria

    July 14, 2017 at 5:36 pm #95265
    gavin
    Moderator

    Dear Jonas,

    I am so very very sorry indeed to hear of the passing of your sister Myrna. Please accept my sincerest condolences. I so wish there was something that I could say right now that would help ease the pain that you feel but I know there are no words. You did everything that you possibly could to help. Please know that we are all here for you and my thoughts right now are with you and your family.

    Thinking of you all right now.

    Gavin

    July 14, 2017 at 12:44 am #95264
    darla
    Spectator

    Dear Jonas,

    I am so sorry for your loss. It sounds as if Myrna was a wonderful person and meant a whole lot to you. I am glad she was surrounded by the love and support of family and friends. My thoughts are with you and all who knew and loved her at this sad and trying time.

    Hugs,
    Darla

    July 13, 2017 at 4:51 pm #95263
    bglass
    Moderator

    Jonas,

    Please accept my condolences and prayers. Myrna was blessed to have such a devoted and caring family and circle of friends to bring comfort and support.

    Regards, Mary

    July 13, 2017 at 4:41 pm #95262
    karend
    Spectator

    Jonas,

    My thoughts are with you all, and I am deeply saddened that you have had to experience this.

    Thank you for sharing Myrna with us.

    Peace and blessings,
    Karen

    July 13, 2017 at 3:48 pm #95261
    positivity
    Spectator

    Jonas,
    My deep condolences to your family. You are an amazing brother for doing everything you can and Myrna’s energy will always be present. I’m glad she was with family.

    July 13, 2017 at 2:43 pm #95260
    lainy
    Spectator

    Dear Jonas, I am so very sorry and please accept my heartfelt condolences. I feel that Myrna will always be around you, just look for her in everything you see.

    July 13, 2017 at 2:22 pm #95259
    marions
    Moderator

    Jjgunny….please accept my most sincere condolences on the passing of your dearest sister. There are no words to help ease you through this most difficult of times, but know that we are here for you, always. Myrna’s legacy is forever embedded in our hearts and on this site.

    Hugs and love,

    Marion

    July 13, 2017 at 1:39 pm #95258
    jjgunny
    Member

    Myrna died early this morning at the hospital .she was the most kind, beautiful and wonderful person that I’ve ever known and she didn’t deserve this. I don’t think I’ll ever hurt as bad as I do now.

    July 11, 2017 at 1:38 am #95257
    jjgunny
    Member

    Hi Karen,

    She is never alone and surrounded by family and friends at all times. Even her best friends from New York have been flying in almost every week to be with her. She is truly loved by so many people.

    KarenD wrote:
    Jonas,

    My heart is breaking for you and your family for all of the sadness and grief you must all be feeling. I am so sorry that this is happening. I hope that Myrna will improve over night after her stent exchange and that she is resting peacefully.

    Is your family taking turns staying with Myrna over night?

    Hugs,
    Karen

    July 10, 2017 at 9:45 pm #95256
    karend
    Spectator

    Jonas,

    My heart is breaking for you and your family for all of the sadness and grief you must all be feeling. I am so sorry that this is happening. I hope that Myrna will improve over night after her stent exchange and that she is resting peacefully.

    Is your family taking turns staying with Myrna over night?

    Hugs,
    Karen

    July 10, 2017 at 8:35 pm #95255
    jjgunny
    Member

    Hi Marion,

    They are checking her potassium daily, it was initially very high due to her kidney insufficiency, but has been normal/low for the past few days. Her doctor isn’t sure what’s causing her encephalopathy, we are in a wait and see situation right now. She doesn’t seem to recognize any of us at this point, it’s truly heartbreaking. I hope it’s temporary and that she’s still in there somewhere. I wonder if anyone else has experienced this ?

    marions wrote:
    Jonas….good to hear that all test results came back as normal. I wonder, have they checked her potassium level? Just thinking out loud. It may or may not provide some answers re: Myrna’s occasional state of confusion.

    Thinking of you and sending a tidal wave of good wishes your way,

    Hugs
    Marion

    July 10, 2017 at 6:11 pm #95254
    bglass
    Moderator

    Jonas,

    It sounds from your description that Myrna is receiving good care. Prayers and best wishes that her progress continues.

    Regards, Mary

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