Hi

Dear Roni, so good to hear from you again and with such great news. I wish for your New Year good health and for your Dad to keep improving. See what a little attitude can do!

i am reading this and thinking, dad, its my mom, but we both have the same names!!! oiy vay!

Hi Roni,

Thanks for the update on your dad. I remember when my dad was diagnosed he took it pretty hard. His CC was inoperable and he spent pretty much the next 7 weeks in the hospital and had his PDT treatment. He had quite a lot of rough days and even when he came home, it took quite some time for my dad to come to terms with everything. But after he was home for a while his mood lifted quite a lot and he got back to his old self. Talking about things helped for my dad and we talked quite a bit. Hopefully your dads mood will lift a bit now that he is back home with his family.

Another thing that worked wonders for my dad was him going to the day care centre here. He was sceptical at first so we went up to see what it was like but dad kept an open mind about it. Well he absolutely loved it! He started going just once a week for a few hours then started going twice a week, again for about 5 hours each day. I do think that this helped my dad enormously as it let him see and feel that he was not on his own in this and he was around other people who also had cancer. But not only that, they used to have a great laugh there with each other and humour is always a good thing! I don’t know if this sort of thing is for everyone, perhaps not, but it worked wonders for my dad and his mood. Perhaps this is something that you could look into for your dad?

Keeping my fingers crossed for your dad with his app with the onc on Monday.

Best wishes to you and your dad,

Gavin

Roni: Let me join the others in welcoming you to this site. You are right, there is not a lot out on the internet regarding this cancer. Like you prior to my now 63 year old husband being diagnosed with this cancer, I knew nothing about it. Now I think I could write a book on it!

Tell your father that NO ONE has an expiration date stamped on their butt, or on the bottoms of their feet. My husband Tom was given a 6 month terminal diagnosis, 9 months ago! I feel that attitude and prayers and being on top of how the person with CC is feeling on a day to day basis has a lot to do with how long someone lives with this cancer. If a doctor tells you 6 months and you do nothing except figure that you will be gone in 6 months, then that may be true. But if your attitude is such that you WANT to be here in 9 months, and if you have people helping you to be strong and think positive and you are getting the medical treatment that you need, being careful to seek out that medical attention whenever something is ‘not feeling right’ or ‘not looking right’ and not taking ‘NO’ for an answer….then I think that CC patients can many times outlive such a dire prediction.

Tom and I are now in his 9th month of life, with no end in sight. However, with that being said, we are diligent in seeking answers, second and third opinoins, etc and staying on top of his medical issues.

Prayers are coming your dad’s way from Wisconsin.

Go with GOD and KEEP KICKIN’ THAT cancer.

Margaret and Tom (My husband and Cholangiocarcinoma)

Hi Roni,

Welcome to the site, although I am sorry that you had to find us all. And I am sorry to hear about your dad and what he is going through. I was my dads carer during his fight with CC so I know what you are going through right now.

You are doing everything right in trying to find out all you can about this and like you, I have never heard of CC until my dad was diagnosed. Keep coming back here, keep asking questions and we will all help you if we can.

My best wishes to you and your dad,

Gavin