Hi and Thank You!
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I was treated at NY Presbyterian in NYC and they routinely provide translators to almost any language spoken. My surgeon is Japanese (Dr. T Kato), who speaks fluent English and Japanese, and may speak other languages as well. CC, because of its rarety, is best treated at major NIH cancer centers, and some are better than others for CC.
Good luck,
Hi Max,
I speak Cantonese and my mother was diagnosed with CC last year. How is your friend doing now?
Maggie
Max…..Not only are you touched by this one, but twice. I am so sorry to hear this. Chinese speaking patients rarely visit this site. In most cases someone with English speaking skills will communicate with others on their behalf.
Where is your friend being treated? Larger cancer centers undoubtedly will have have patients of Chinese descent. Although, physicians are not allowed to disclose the names of patients there may be a chance that him/her would be kind enough to connect your friend with someone. Of course, the other party would have to grant his/her permission first.
Also, your friend may want to visit some of the cancer support groups with the hope of locating a person with this disease.
Given your previous experience with your brother much you already know, some things have changed within the last few years. Various treatment options are available now which had not been available while your brother was fighting this cancer. There has been a big increase of CC within the last few years; the reasons are still unknown although, it has been suggested for better protection methods to be the reason for it. Mainly though, awareness in the medical community has increased. All of which will benefit your friend.
Have you thought of starting a blog in Chinese? Or, are you adventurous and able to build a website similar to ours? Gladly, you can count on our support. Either way, we are here to help.
All my best wishes,
MarionMax – Wish I spoke Chinese. I’m not sure if there are any on this website who do, but encourage your friend to join…..what a great place to find support. Much luck – Nancy
Hi,
My name is Max and I live near Pittsburgh, PA. I lost my older Brother David to cholangiacarcinoma in 2003. He was 46. Unfortunately, I recently learned that a good friend of mine has the disease as well. What are the chances? At least I am able to find some comfort in helping with the information my family and I gained during David’s illness.
From David’s definitive diagnosis during surgery in March 2002, through his chemo and radiation treatments, with family and friends being tested to be a living donor, the hope of a transplant in August only to discover that the cancer had spread aggressively, then his untimely death in February, 2003, our family experienced many hardships and mixed emotions. If there is anything I can do to help you through your treatment or even grief, please contact me.
I am going to encourage my friend to join this site as well. In the interim, I am looking for any Chinese speaking persons that would be able to communicate with her. She is of Chinese descent, with great English skills, but I think it would be comforting to speak within someone in her native language if possible.
Thank you for such a great website and also for the work in advancing research for the cure of this terrible cancer.
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