Hi, I’m a new member

Discussion Board Forums Introductions! Hi, I’m a new member

Viewing 15 posts - 1 through 15 (of 17 total)
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  • #29029
    katieloumatt
    Member

    Hi Onlygirl and welcome to this friendly, supportive ‘club’. I have only been posting on here about a month but everyone is so nice and responnds truthfully and honestly with their experiences.

    I hope you and your family get the guidance and advice you need fron the doctors,

    Katie

    #29028
    lalupes
    Spectator

    Welcome, onlygirl. I’m so sorry you have to be here but it’s nice to meet you.

    I have no experience of chemo yet, but my sister will be starting a regime as soon as they get her bilirubin below 50, so I’ll be learning about the treatments with you.

    With my very best wishes to you, your dad & your brothers.

    Julia :)

    #29027
    onlygirl
    Spectator

    Hello everyone, I’ve been keeping up with my reading of this wonderful website while my dad was receiving his radation. He finished about 2 weeks ago & went thru it with no real problems. He has been tired & making himself keep up his eating. I think he has only lost a few pounds. He had 28 treatments. He had his 84th birthday on Sept 1. We went to see the surgeon who did his operation & the surgeon is vey happy with the outcome. We went to the chemo Dr. last week & he wants to start him on his chemo treatments: Gemzar 5 FU. 6 months at once a week for 3 weeks & a week off. I am on the website now trying to learn about this treatment. I am hoping I can get some feedback from other members who have gone thru this type of treatment who are older like my dad. My brothers & I have told him this is his decision. The Dr. says if you want to fight & hope for a longer life, than go for it. If you have lived a full life & don’t want to fight, don’t do it. I just wonder how much more time it will give him if her goes thru it or will it bring down his quality of life too much. The Dr. said he can always quit if he doesn’t want to finish it, if he thinks it’s too bad. He will go for a CAT scan in the 1st part of Nov.
    Take care & God bless.

    #29026
    phoebewood
    Member

    Onlygirl,
    My father was medevaced from Mexico to Philadelpia 4 years ago. He was unconscious, 87 and in congestive heart failure. While in the hospital the doctors discovered he had colon cancer. He had surgery, chemo and radiation. It was a slow but steady recovery until recently when his age is catching up to him. He has never regretted what he went through to have the last 4 years of his life.
    Best of luck to you and your father.

    #29025
    louise
    Spectator

    Onlygirl,
    Yes, you will find lots of support on this site. I had 28 radiation treatments and kept going to work throughout. I did experience more tiredness after the second week, but I only needed a little more sleep. The radiation oncologist prepared me for the probable side-effect of diarrhea, but instead, I experienced constipation. It responded to treatment and I am now in remission with my next CT scan scheduled in August. Yes, I am only 54, so that is not a good indicator of how your Dad would respond. However, my Mom is 88 and also has CC. She has chosen NOT to pursue chemo OR radiation OR surgery. Her oncologist didn’t think she would survive a year, but she’s still going almost 2 years later. I don’t have a lot of details on my Mom, because she lives with my sister about 3 hours away, and travel for either of us is not as easy as it used to be. Where do you live and where does your dad go for care?
    God bless you all!
    Louise :)

    #29024
    cherbourg
    Spectator

    Onlygirl,

    It sounds as if your Dad is an amazing man. It also sounds as if you have the right doctors onboard that are treating your dad as a person instead of just another disease.

    You might try the search engine at the top of the page and search for radiation or any other concerns you might have. We are all here for you and your family. Remember to take care of the caregiver (that would be you! lol).

    You will find some of the most caring and compassionate people and the best information on this site.

    Many hugs to you, your dad and your family.

    Pam

    #29023
    devoncat
    Spectator

    Onlygirl,
    It sound like your dad is doing great and that your doctors are being aggressive. Good news all around.

    Best of luck.

    Kris

    #29022
    walk
    Member

    Onlygirl,

    Your dad is amazing! And lucky to have such dedicated children. I have no experience with radiation, but my 87 yo father has CC. Surgery was not an option, but he did so poorly with a laprascopic biopsy that in hindsight I am glad we didn’t have to debate a surgery option.
    Your father has to make decisions about quality and quantity. He has fared incredibly well so far. I would get as much info as you can from more than one source about the side effects of radiation.

    Good luck!

    Jan

    #29021
    marions
    Moderator

    Your Dad is “Superdad” for recovering as well as he has from the resection, at his age. Congratulations. You can be guaranteed for good thoughts coming his way. Collectively, I believe, the members on this board can move a mountain. (O.K. I might be bias.)
    I am looking forward to hearing from you after your Dad’s conversation with the radiologist.
    Marion

    #29020
    onlygirl
    Spectator

    Hi everyone, thank you all for your kinds words & information. I wanted to wait until my dad saw the chemo Dr for the 2nd visit, which was on June 11. Dad is going really good, he feels he’s 60% back to what he was. The chemo Dr was encouraging him to start his radation & not wait the 3 months for the next cat scan. The Dr says he’s ahead of the game now with the clear cat scan in May and if he waits till Aug. he may not be so lucky with a clear scan. The Dr feels that if he gets through the radiation ok that he may want to think about chemo, but that is a long way ahead still. I asked him what stage dad is in & he thinks maybe stage 1 or 2, probably 2. We feel dad is very lucky. My brothers & I are worried about the side effects of the radation & hope he can make it through the whole process. We are all trying to keep positive thoughts.
    We also saw his surgeon that did the operation & is amazed how well he is now doing & how good he looks. One of my brothers walk with dad every morning & I have him over for dinner most nights & his appetite has come back.
    Dad said we will call the radation dr next week. Dad has a long road ahead of him, so please keep him in all your prayers.
    May God bless you all.

    #29019
    kristin
    Spectator

    Hi,

    I had 33 radiation treatments (with Xeloda at the same time) and I’m totally convinced that’s the reason I’m doing so well 2 1/2 years later. The treatment was for an inoperable recurrence on the IVC (blood vessel) and it blasted the tumors so well they have barely grown since then. So, I’m very glad I did it!

    The treatments themselves weren’t too bad at all. After about a week, I started having heartburn, but Mylanta took care of that pretty well. And teh fatigue built up– after about the third week, I really needed 9 hours of sleep every night plus an afternoon nap. But it really only took about 1-2 weeks after treatment ended to start getting my energy back.

    Everyone’s experience is different, but that was what it was like for me. Obviously I’m much younger than your dad, but in general, a lot of people find that radiation is quite tolerable.

    Hope this helps. My best wishes to you and your dad.

    Kristin

    #29018
    devoncat
    Spectator

    I dont know about radiation either but wanted to welcome you to the site. Hang tight, someone who has experienced radiation will be along soon.

    Kris

    #29017
    jamie-d
    Member

    Onlygirl;
    Just wondering how your Dad is doing? Any decisions about radiation? How is he feeling? Hope he is feeling well. God Bless,
    Jamie

    #29016
    jamie-d
    Member

    Welcome onlygirl.
    I do not have any experience with radiation so can’t help with any info on that but wanted to say welcome. I will keep you and your Dad in my prayers. God Bless,
    Jamie

    #29015
    lainy
    Spectator

    So sorry you had to find us but welcome and glad you did. My husband had radiation last summer and he was fine until the very end of the treatments and then he got so tired I thought he was hibernating. But, after about 3 weeks his strength came back and he is fine. Like Marion said it depends on the kind and dosage. I think that because of your father’s age with this, I too would get a second opinion and I would ask them exactly what they feel you should expect.
    This CC is crazy and all we have learned through the years is that we really know nothing as each person has different reactions to what they are going through. I always go with my gut feeling. Right now I am thinking if he can wait 3 months maybe he doesn’t need it. Did the doctor say they got all the cancer or are they suspicious there could be more? You will learn very quickly that you become the fiercest advocate possible and ask away until you are satisfied! Please keep us posted.

Viewing 15 posts - 1 through 15 (of 17 total)
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