home for the hollidays I pray
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Thank youall I am scared of the treatments because I live by myself and have lost many friend,well I thought most were,when you stop your regular activities and cant work anymore,your list gets small then some do not know how to take mebeing sick and I have run others off because of being sick sometimes and on meds I am not very nice most the time yes but alot of people I thought I could count on are not there,you find out your true friends and most of them have very active busy lifes,I have a problem with asking for help and think its all a burdon because I have been so independent,I really do not want to get sicker if I can maintane the way I have been and can get better digesting and diet down I might choose not to be treated, at this point I want to be a little healthier if I do choose to have treatment.I am checking today on transfering or getting a second opinion from University Hospital to the Cleveland Clinic, Docs are alot closer and treatment would be also. I hope it slows down enough for the colostomy bag to do its job and to keep digesting food,I am not sure what the next symptoms might be,but right now I am not in alot of pain just need to get diet better to help digest food better thanks guys
Mr. J, all I can say is please keep fighting. There are no words to cushion the blow, but I hope you find the strength to continue the fight. Take the info that the drs give with a grain of salt. Doctors often do not know much more than patients. They certainly didn’t know more than me, and that’s sad. If you believe that you have the power within to conquer this nasty disease, then you may well be able to. I was also on Gemcitabine & Cisplatin (which is the word I think you were trying to think of). Unfortunately for me, this drug combo did not work. I was lucky enough to find a miracle surgeon who removed my tumor when many, many drs said I was inoperable. Everyone’s case is definitely unique, but we all share one commonality & that is to beat this disease to death. I hope this drug treatment works for you. I know it has worked for many. If it doesn’t seem to work after a cycle or two, please force your drs to try something else. Time is of the essence with this disease, and wasting time with drugs that aren’t working will not produce a good outcome, so just keep trying whatever you have to until you find something that works. I believed there was someone who would be brave enough to tackle my tumor & I found him. If you believe there is treatment that will work for you, then focus on finding it & you will. You are certainly in my prayers Mr. J. I’m a tough little lady who is going to send some of my power your way. Wishing you a miraculous holiday. Good luck with your treatment. Hugs!!!
Dear Mr J – While it is discouraging to hear that the cancer has spread, maybe it is an opportunity to find a new treatment that will be effective. Our best thoughts and our earnest prayers are with you. May the holidays bring unexpected blessings. Susan
Mr J,
I’m so sorry to hear of the spread of cancer. I’ll be praying that the onc can find the right treatment to reverse the spread and restore your health. Hope you’ll have a very Merry Christmas in spite of this setback.Grace and Peace,
bobThe oncologist said the cc has spread around the whole outer side of the abdominal cavity and is what is causing the pressure and wants to start me on gencidebine and another begins with a c I will read notes in morning and give better knowlledge,it late and I just woke up but need more rest they also mentioned a new clinical trial method I will go over Have a Happy Hollidays friends that are sick,im saying a prayer for all of us and our family and friends to try to make it this way Amen
Dear Mr. J – Here’s hoping that you will enjoy your holidays at home and your meeting with the oncologist on the 20th will be positive. Blessings, Susan
Hi Mr J,
I too hope that you are home for the holidays and I hope also that you get some good news from your meeting with your onc on the 20th. Loads of positive thoughts coming your way.
Best wishes,
Gavin
Finally, you will be able to eat. I am with you in that infections and scar tissue can cause many problems. Good luck on your visit with the oncologist. And, please stay in touch.
Best wishes,
Marion
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