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    Lainy is collecting letters from caregivers and survivors. Each and every letter is important to us. Thank you so much for your letter and contribution to this important endeavor.


    Hi Lainy and all,

    My name is Gavin and my father was recently dignosed with CC. I sent you a letter to the email link under your name talking about my fathers story. I only registered with this excellent site yesterday, so I don’t know if my letter will be okay for you to use. Having only just joined the site, I didn’t know if it would be ok for me to write to you as a carer and a son regarding my fathers story, or if you only wanted letters from people suffering from CC. Anyway, I sent you the letter. Hopefully you will find it useful.

    I will do an intro type post to all on myself over the next few days.

    Love to all



    Hooray! Let’s hope you get that magic #30 you were looking for.


    Thanks, Karen, that gives us 29!!!!!


    Dear Lainy,
    I ditto Belle’s message. I am sending my one page letter and hope this helps the cause in some small way. I am not much of a letter writter, but I did the best I could. Thank you for your efforts.


    Well, Lainy , you finally goaded me into sending one. It’s the best I could do under the circumstances. Good luck and more power to you. I have admiration for people who walk the walk, not just talk the talk. Have a good one, Belle


    No form letters. Caretaker and patients have written 1 page letters mostly about their journey on this rocky road. Everything helps to put the point across that we are ignored in this battle.


    Hi Lainy – I guess I’m jumping on the bandwagon a bit late. Is there a form letter you are doing that I can add my name to?


    Good morning CC world! We now have 27 letters for the Oprah Show! While I am waiting for the letter from the Board, I thought I would just say 2 more days and mail the package Friday.That would give us 2 more days to perhaps get 3 more letters! So if you have not jumped aboard and still would like to….just send me your 1 page letter to my e mail address. I’ll be CCing you!

Viewing 9 posts - 1 through 9 (of 9 total)
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