Infusion time question for Cisplatin…need help from your experiences
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Does anyone know if oxaliplatin and cisplatin can be substituted for one another? I think they are closely related.
My husband has had oxaliplatin with good results. However, the combo of the folfox, oxaliplatin and leucovorin has caused extreme cracked skin on his fingers. Anyone have any suggestions as to what he can use. Eucerin is useless.
If the manufacturer says to give it over 6-8 hours…why do they try to do it in 1-1.5 hours then? Does doing it faster make it work better?
Jason, interesting that they gave your wife another bag of fluids between the Cis and Gem…..as they did not do that with me on Tuesday….just the initial bag.
Julie T.
Porter….I feel absolutely great tonight….actually as of mid afternoon or so, I really hit my stride…..tightness in my chest was gone….red and hot rash on my face was gone…shortness of breath gone…..chills and shaking from night before were gone…no more itching…edema in my legs was gone except for the normal small amount usually there from standing on my feet for years. know it’s only one infusion…the first one…and I’m fixating on everything, but it’s happening to ~me~….and it’s all pretty scary when you don’t know. I was taken back by feeling so crappy the day of the chemo and next day since I thought most people didn’t have any issues until the 3rd day or so. Unless something huge suddenly hits tomorrow on the actual day 3….then I can put this one behind me I think. I’m still concerned about the itching which didn’t go away without Benadryl and must report that. Going to make up a list of things as I know I should do. I do think that the fluid retention thing got out of hand the day of the chemo because the oncologist was too busy to come check me out and even after I had tightness in my chest, he still didn’t come…..just about 10 feet away in an office. I know the guy cares about his patients, but I’ve talked to someone else who was with their friend getting chemo elsewhere in town….and when someone in the chemo room had a similar situation to mine…tightness in her chest…a code was called and three oncologists were at her chairside in a couple minutes trying to get the problem fixed. When stuff like this happens….and your gut says it shouldn’t be this way, you start to question everything….and confidence level goes down….just not a good way to start out something like this.
Sorry Julie that u had some uncomfortable reactions. I meant to add that I did not have any edema or swelling while I was on this regimen. Glad u feel a little better today.
PorterMy wife did 12 cycles of Gem/Cis. The entire process took about 4-6 hours depending on how much fluid was required. However, the cisplatin was administered over 1 hour.
Andrea would come to the treatment as hydrated as possible (lots of liquids beforehand). She would then usually get a bag of fluids. They would then keep track of her urine production. After the bag of fluids and assuming enough urine, she would get the cisplatin over an hour. After that, she would get a second liter of fluid.
Anyway, getting cisplatin over 1-1.5 hours is consistent with my experience (although the 2 liters of fluids + gemcitabine made the process take a lot longer)
Jason
I was reading the print out on Cisplatin that the oncologist gave me the first day of chemo this week. It says that it should be given over 6-8 hours….but mine was done in 1 and a half hours. Is that a normal thing to do? Why would they do it that fast…other than to just get you moving out of there and done before they want to close the doors at 4:30 p.m. (I was there at 8 a.m.) I had a lot of trouble with too much fluid…too fast….and had major edema in my lower legs and my kidneys wouldn’t flush stuff out (I have excellent kidney health…so that isn’t an issue). Half way through the gem bag, I had tightness in my chest and difficulty breathing, and after having my BP and lungs checked…we waited for 20 minutes for the doctor to decide what to do (he was in consult with a patient). Finally they gave me a push of something in the IV line to make my body release the fluid….took half an hour to work…and then worked…and worked and worked…but I still almost couldn’t walk from all the fluid in my legs….up to my knees….so uncomfortable. The tightness in my chest took over 24 hours to go away….about the time when the fluid finally left my legs,. (I elevated them as much as possible during the day and then at night had them above the rest of my body completely and that is what finally got rid of it. Today I was fine. But, I’m concerned about the difference in what the Onc used for time to do the Cisplatin and what the company fact sheets say. I know a lot of people on here have had Cisplatin. What kind of time frame do your doctors use? Did you have any issues with the edema like that?
Julie T.
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