inoperable, but clean scan at 15 months (now 39 months)
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which treatments did she receive ?
do you use nutrition support ?
thank you in advance.I wish all of you health, happiness and success.
Brilliant news about your mum Catherine, love hearing this!! And yes, there is hope even without surgery. Sorry to hear about your dad though and his lung cancer fight. My aunt starts her chemo for her lung cancer on Monday after it was delayed from last week.
Hugs to you,
Gavin
great to hear your mother is still doing well Catherine, it is a success story that is as big as mine to be cancer free after being told she is inoperable. Now there is a miracle beyond all in my book, may her success continue, Pat
That is incredible news, and nice to see evidence that conventional treatment works.
I am glad to be part of this team of people sharing experiences, and hope to be helpful to someone out there who is going through similar experiences. I also want to make a difference in this rare cancer, the disappointment, shocks, fights, hopes, and eventual positive outcomes on various treatment methods. Hopefully more people sign up on this board and share, as we know it’s hard to even find people with this rare condition.Dear Catherine, I am sorry about your Dad and hope he is not in pain. As for your Mom, WOW, I am so glad she is not normal!!!! Bittersweet news with your parents but Dad has one of the best care givers he can have and soi dies your Mom with you for a daughter! Much love and prayers for your family.
Absolutely phenomenal news, Catherine. While your mom is not the norm for CC, she is absolutely proof of hope and what might be available to others if they push for more. Prayers for both your mom and dad and your also to the rest of your family as your dad comes to the end of his fight with lung cancer. My love to you alll.
Julie
Another clean scan after 6 months- still NED.
Bittersweet since Dad is coming to the end of his battle with small cell lung cancer, but we are so blessed that Mom has defied the odds and prognosis, and is here to take care of him and be by his side. Mom is unfortunately not the norm, but is living proof that even without surgical resection, there is hope. Get multiple consults and push if needed. When the doctor called this evening (after 5 on a friday), Mom said she doesn’t believe she’d be here if we hadn’t pushed for the second SIRT treatment to kill remaining tumor. Love and best wishes to all, CatherineCatherine….this is great to hear, Catherine. Congratulations. You may want to consider sharing your Mom’s story in the survivorship thread.
On to many more successful years.
Hugs
Marionwonderful news, Catherine. I loved hearing about the condo vacation. Just walking on the beach is a gift.. Julie
Great news Catherine, 3 years, excellent!! Now onto the next 3 years and much more too!!!
Hugs,
Gavin
YEA! Catherine what great news. Who says we can’t beat the odds! Tell Mom to keep up the great work and love that she show that little monster who is the Boss!!! I wish for many more good years and ya never know when that cure all will peek its head around the corner and Mom is cured!
Today marks 3 years since they aborted Mom’s surgery and said resection wasn’t possible. The whole family was there when the surgeon brought us back to a private room to break the news and give us a very grim prognosis. I am feeling very thankful today and wishing that we continue to see treatments continue to improve so we can see more patients surviving and find a cure for this lousy disease. Best wishes to all.
CatherineGoogily- Unfortunately he is moving to FL. I will have to find out exactly where, but he said his contact information wouldn’t change and he would help us find a new IR if needed (I was hoping he was just moving a couple miles down the road to JH). Even years ago, a long-time member ( Percy) was in touch with Dr Moeslein and he was ok with his contact info being shared. It was so amazing to have a doctor who would text me even if he was out of town. Send me an email anytime and we can discuss further.
Lainy- thanks for asking. Dad also got his scan results this week and everything is stable
With small cell lung cancer, the remission is normal after first-line, but unknown how long it will last. We will not be doing more chemo when it returns. The brain surgery/radiation/chemo have taken a toll on his cognitive functions, so although still a good quality of life, he really needs Mom with him 24/7. Last week we had a great week at the beach in Delaware. I found a condo right on the boardwalk with an elevator and a pool. We had 18 family member in 5 rental units. And, planning a return to Florida in October if he is still up to traveling . We went to Fort Myers Beach in 2014 for Mom’s “last” vacation and returned in 2015. We’re hoping they can both be walking the beach again (it will be their 57th anniversary). Now I just need the winning lottery ticket so I can retire.
Dear Catherine, so glad to get the Mom report. Way to go. I understand the feeling when an ONC your love leaves. Teddy had the same ONC for 5 years and I started with him when I got another rare cancer. Then came the news that he was retiring. I just sat there and cried right in front of him. Having an ONC you believe in is so very important. Good for Mom to have a staycation until January.
I feel bad for all of you to get a double dose. How is your Dad doing now?
With all you have on your plate we are so happy that you still continue to help others here. Catherine, you are a very special lady.
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