inoperable, but clean scan at 15 months (now 39 months)

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  • April 10, 2015 at 6:24 pm #86182
    middlesister1
    Moderator

    YIPPEE!!!!

    CT results today; the SIRT continues to work for Mom. Her scan showed no change, Still no mets and tumor still appears dead. We even heard the word remission from her IR. We met with ONC and IR, and they both agree that she should enjoy treatment free life and come back in 4 months for another scan.

    Catherine

    January 13, 2015 at 1:07 am #86181
    middlesister1
    Moderator

    Positive thoughts from here too! We’ll all be waiting for the good news.

    Catherine

    January 12, 2015 at 6:48 pm #86180
    gavin
    Moderator

    Fingers crossed for your dad Teresa, loads of positve thoughts heading your way!

    Hugs,

    Gavin

    January 12, 2015 at 4:03 pm #86179
    lainy
    Spectator

    Dear Teresa, we will all be right with you wishing for great results for your Dad. January 27th, bring it on!!!

    January 12, 2015 at 10:21 am #86178
    rain
    Member

    Excellent news Catherine!! Am so pleased for your mother. Quality of life is so important.
    My dad has his CT scan on 27th Jan after the SIRT on the 17th December. I am praying he has a good result.

    All the best,
    Teresa

    January 10, 2015 at 8:36 pm #86177
    lainy
    Spectator

    Very good news Catherine, no one wants a ‘dirty’ PET!

    January 10, 2015 at 6:40 pm #86176
    gavin
    Moderator

    This def needs to be in this section Catherine!!! Yay!!!! Def time to plan that holiday!!

    Hugs,

    Gavin

    January 10, 2015 at 2:14 am #86175
    darla
    Spectator

    Catherine,

    This is definitely good news! Enjoy that vacation and I too hope there will be many more. :)

    Hugs,
    Darla

    January 10, 2015 at 2:10 am #10844
    middlesister1
    Moderator

    HOPE :)
    In Nov 2013, Mom was closed back up after seeing that tumor (ICC- 5 CM) was in a bad place and could not be resected.
    Two rounds of GEM/CIS which shrunk tumor 20% and then SIRT in Feb 2014. Although all still looked stable in Sept 2014 scans, opted for a second treatment of SIRT in Nov to attack it while we could.

    PET/CT today shows that the tumor is necrotic (dead). Although not a cure- there still may be CC cells alive- the PET shows no hot spots beyond inflammation from the radiation treatments; no cancerous activity is showing up in the tumor location or other places in her body.

    The statistics are outdated and not clearly conveying that although there are still too many diagnosed too late, there are others who are getting treatments and surviving (with a normal quality of life) beyond what we were told at the beginning. If we hadn’t tried the chemo, we would not have moved on to the radio embolization.

    We plan on a second (and hopefully many more) April Florida vacation with Mom since diagnosis. So different than what the literature and doctors led us to believe at first.

    Catherine

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