CT results today; the SIRT continues to work for Mom. Her scan showed no change, Still no mets and tumor still appears dead. We even heard the word remission from her IR. We met with ONC and IR, and they both agree that she should enjoy treatment free life and come back in 4 months for another scan.
In Nov 2013, Mom was closed back up after seeing that tumor (ICC- 5 CM) was in a bad place and could not be resected.
Two rounds of GEM/CIS which shrunk tumor 20% and then SIRT in Feb 2014. Although all still looked stable in Sept 2014 scans, opted for a second treatment of SIRT in Nov to attack it while we could.
PET/CT today shows that the tumor is necrotic (dead). Although not a cure- there still may be CC cells alive- the PET shows no hot spots beyond inflammation from the radiation treatments; no cancerous activity is showing up in the tumor location or other places in her body.
The statistics are outdated and not clearly conveying that although there are still too many diagnosed too late, there are others who are getting treatments and surviving (with a normal quality of life) beyond what we were told at the beginning. If we hadn’t tried the chemo, we would not have moved on to the radio embolization.
We plan on a second (and hopefully many more) April Florida vacation with Mom since diagnosis. So different than what the literature and doctors led us to believe at first.