Thanks Marion, Lainy and Gavin!
I think this is very important news for several reasons, not least because the ILCA have considered Cholangiocarcinoma important enough to warrant being the subject of the first of their International Guidelines to Diagnosis and Treatment.
Also, the liaison between the UK and USA on this matter is of particular interest to us in the UK, and will, hopefully, lead to more consensus on the treatments used – the seemingly different approaches can be very worrying to CC patients currently.
And, yes, the level of expertise being brought to the table is certainly impressive. Great to know that the right people are on this job!
AMMF has close links with both Dr Shahid Khan and Dr John Bridgewater here in the UK, so if we can prise any info out of them, we will certainly share it.
Another step along the road …
With love and positive thoughts for our CC family across the world.
Helen
http://www.ammf.org.uk