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Thanks Gavin, the stint worked immediatley. The jaundice left failrly quick but the itch stuck around for a while. It’s gone now. Thanks for the advice on the search.
Thank you
Dave
Hi Dave,
Welcome to the site. Sorry that you had to find us all here but I’m glad that you’ve joined in with us all, as you have come to the best place out there for support and help. Thanks for sharing your story with us all and no, your post is not long winded at all so please do not worry about that. You go ahead and post as much as you want, and if it helps as well, please feel free to shout, scream or vent if you want too!
How is the stent working out for you and has it cleared up the jaundice yet? My dad also had a stent, a metal one for his jaundice and it got the bile flowing again and got rid of that itching! And thanks also for explaining the treatment plan that you are on. I will keep my fingers crossed and hope for the best possible results with it. Also, please keep us updated if you could on how you are doiing and how the trial is going for you as well. We are all here for you.
Many of our members have been or are on Gemcitibine and there are a ton of posts on Gemcitibine. Using the serach forum function here will throw up these posts, and we also have a great chemo board here that I am sure will be of great use to you as well.
http://www.cholangiocarcinoma.org/punbb/viewforum.php?id=16
Looking forward to hearing more from you, and please know that we are all here for you.
Best wishes,
Gavin
Hi,
Gemzae is easy to take, you may not have any side effects,a bit nausea at the most.you are in good hands good luck.
God bless.Hello, My name is Dave. I live in Cedar City, Utah. I turned 40 yesterday, I am married and the father of 4 and 6 year old boys. The week before Halloween of this year, I had some abdominal pain. I tolerated it for about 5 days and scheduled and appointment with my primary doctor. When he came in the room he noticed I was jaundice and after explaining my symptoms he informed me that I should prepare for removal of my gall bladder. After and ultrasound they confirmed my gall bladder was full of sludge and needed to be removed. About 4 days after the surgery I wasn’t feeling any better, my wife noticed my jaundice was getting worse, and I developed the dreaded itch. My doctor then scheduled an ERCP to see if the upper dile duct was ok. I had my ERCP on November 8th. They discovered a Klatskin tumor on my bile duct and it had swollen shut the duct. They doctor then inserted a stint in order for the bile to start to flow. After my awakening from the procedure the doctor told my wife and I what he thought I had and that if it was this my life expectancy was between 6-9 months. They scheduled and MRI and a appointment at the liver transplant center at Intermountain Medcial in Murray Utah. We went up within few days of the MRI and met with them. Fortunetly, that center is doing a medical study on this particular CC through the Mayo Clinic protocols. I met all the criteria and was asked if I would participate in this study. The protocol is 30 radiations treatments( 2 a day) and 3300 miligrams of Xeloda a day. This has to happen 15 times within a 21 day period. Then I do Brackeytrerapy with a radioactive stint followed by Gemcitabine chemo, followed by a liver transplant. I have just compelted the first round about 10 days ago and do the Brackeytherapy on the 9th of January. I have been listed on the liver transplant list and if it doesn’t spread I will be on the Gemcitabine until the liver comes. My attitude has been great and easy to maintain. I have been battling the fatigue and a little nausea but other than that I have been ok. I am nervous about the Gemcitabine. Thanks for letting me post this and I hope it is not too long winded for my first post. I would love any comments about Gemcitabine and how others have handled itl Also, if anyone else is apart of this study. Thanks again. Dave
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