is there anythink I can do

Hi DT,

Welcome to the site, although I am sorry that you have to be here and that you are having so much trouble in getting your mum some help. I am also in the UK, in Scotland, my dad was diagnosed last year and also has a stent inserted. Has your mums doctor even talked with you both about any future treatment options when she does get stronger? I agree with Lainey and find this a bit strange that you have not at the very least been given more information on your mums treatment.

I also agree that you should look to get another opinion here.

When you say your mum goes to hospice, is this run by the Mamillan organisation and is it a day care centre? The reason that I ask is that my dad goes to Macmillan day care twice a week and gets all manner of help there, but no actual treatment of any sort, as that is carried out at his hospital. When your mum was diagnosed, was she offered the services of a Macmillan nurse? My dad has one and she has proven to be invaluable with all manner of help and support at home. They have a phone line where you can talk with someone for support and ask questions.

http://www.macmillan.org.uk/HowWeCanHelp/TalkToUs/Talktous.aspx

Personally what I would do if I was in your shoes is first thing Monday morning, get your mum to make an appointment with her GP and try to see him/her that day. Tell the GP your concerns and lack of information coming from the hospital and ask to be refered to a specialist who deals with CC patients. Katie has given you some suggestions as to where you could go so perhaps that is something to talk about with your mums GP.

Please come back and let us know what happens.

Good luck and my best wishes to you and your mum.

Gavin

Call the doctors office, they will guide you where you need to be. You want copies of her tests and diagnosis ASAP. In the meantime ask our UK Family on this site for suggestions as to who to go to for a second opinion . Good Luck!!

Hi Dt,

I see from your location that you are in the North West. Why don’t you ask if your Mum’s doctor could refer your Mum for a second opinion to Leeds where there is a fine liver unit. Or how about to Christie hopsital in Manchester, which again isn’t far for you to travel.

As previous posters on this board have said because this cancer is so very rare a second opinion may well be helpful .

Thinking of you

Katie

We are very sorry you are going through this terrible time. We really need some more information. What has been the diagnosis? How old is the patient? Where are you? Have any tests been run? Please give us some information and we will try to help.

I’m so stupid, and I’m not a computer person, but I’m trying. My soul mate is dying,

Thanks for all the information as it really helps. I have never heard the expression that all liver cancer is stage 3. I am so sorry to say this but to me, something is terribly wrong that nothing is being done for her. I would gather all her information and get her to another doctor post haste. Maybe you should ask this guy (notice I didn’t say doctor) how many CC patients he has treated. No doctor should ever give up on Stage 3 CC Cancer.
There have been many on this Board still around after a lengthy time. I implore you to get her to another doctor quickly as this CC monster is pretty fast in it’s attack. Please keep us apprised in how mum is doing.

Hello and welcome to our little family,

I think it will be easier to offer advice if we have some more information. How old is your mum? How advanced is her cancer? Does she have other health problems? What is your location? Where is your mum being treated? Also, has she gotten a second opinion?

Patty