Lauren and her Therasphere mapping.

Discussion Board Forums General Discussion Lauren and her Therasphere mapping.

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  • #60351
    pamela
    Spectator

    I am not a rude person in the slightest. I always treat people the way I would like to be treated. But, as Marion said and I use this analogy quite a bit too, I am a Mama Lion. You don’t mess with my kids or you see a different side. Sometimes my kids beg me not to say something if I feel someone has hurt them, but I just can’t help it. And my kids aren’t even kids anymore!! It’s that darn motherly instinct. My husband is way worse than me. He will say something to anyone at anytime. Lauren told me to let this one go , but I could tell it totally embarrassed her and you bet, before the Therasphere procedure, I will pull her nurse aside and ask them to please make sure Lauren is provided a little modesty and thank them. Hey, thanks you gals for all the support again. I totally appreciate it so much.

    Kris- all I can say is “You go girl!!!!”

    #60350
    kris00j
    Spectator

    Pam:
    I’m so happy you heard back positively and before the weekend was even over. That shocks me!
    I’m sure they’ll check to see who was on. And he might have to ask you and Lauren if she remembers any of the names. But remembering stitches should really narrow down the 1 nurse.
    But she might have to try to remember names and what they look like. I hope she’s better than me there. I can’t remember the nurse’s names 2 minutes after they stick me! Or what they look like. I have way way too much to think about when going for a test like that one.
    And I’m sure they will “talk” to the nurses when they figure out who it is. So I hope you get much better treatment in the future.
    I know when I first started I didn’t want to “bother” anyone. Now I don’t care. It’s my pain, time, meds, or whatever and I want to be taken care of. Especially when I’m in a hospital room. I waited as long as I could last year when I had my surgery. Now I talk to the nurses, complain if I don’t like something and generally want them to remember I’m there instead of ignoring me! :D
    I don’t want to be a pain in the keester, so I try not to be too bad, but I don’t let things slide anymore. I let them know what’s wrong!

    #60349
    marions
    Moderator

    Pam…I am glad that you were heard and responded to favorably. Hopefully the corrections will be made for the better.
    Before the next procedure I would quietly address this issue again with the nurses and technicians tending to Lauren.
    As they say: Moms are lions when protecting their cubs.
    Hugs,
    Marion

    #60348
    lainy
    Spectator

    Pam…another job well done!

    #60347
    pamela
    Spectator

    Lainy, Marion, Kris,and anyone else that cares to know,

    I received an e-mail from the Chairman today thanking me for the e-mail. He also apologized that our experience was not better, but the report of the problem will help them improve. He also said they are investigating the incident and may contact me for further info. He also said thanks in advance for my help. I thought that was very nice of him to answer me so quickly and really seem to care. All we want is for others to not have to face the same problems when they are already dealing with so much. Thanks for the support, ladies. Love all of you.

    -Pam (& Lauren)

    #60346
    lainy
    Spectator

    Pam, good for you! I am most anxious to hear if you get a reply!

    #60345
    pamela
    Spectator

    Hey Lainy,

    I sent an e-mail to the dept. chair voicing my concerns in a nice manner. I just asked if they could try to be more sensitive to patient’s feelings like with the whole gown thing. We had another incident that day that I didn’t tell you about before. We were in the waiting room and got paged to come to the desk. They told us to go to the recovery room desk down the hallway. When we got there, a nurse was behind the desk and a nurse was standing at the desk. We waited for a while and could hear them talking. It was a personal conversation. They weren’t even talking about a patient’s care. More or less gossiping. The one behind the desk finally looked at us and said “Did ya need something?” My husband was furious, but I nudged him and said “Be nice.” We asked where Lauren was and she pointed to a curtain. I let the chairman know this is how patients and their families are treated by some of his staff and I hoped he would forward my e-mail to the Nursing Supervisor. I told him that I just wanted to let him know how we were treated. I said all the doctors and 98% of the nurses were so great and we are so happy with Lauren’s care. One bad apple always spoils the bunch though. Except we had our share of rotten ones that day!!

    -Pam

    #60344
    kris00j
    Spectator

    Hey Lainy: There’s not THAT many people that would recognize THAT part of my person half shaved!!! heehee

    And Marion, yep, modesty goes out the window. After everyone and their brother and sister drew with magic markers all over my abdomen every day after my surgery: they were marking places to watch for infection, where the pump was, etc., I lost my modesty. Since I didn’t have anything on but the gown and they kept pulling it up. They DID try to cover me, but didn’t always cover me first. I was drugged iand in pain and I REALLY DIDN’T CARE!!! But I’m 48 so yes, it’s a little different. I think even 10 years ago I would have been mortified the first time.

    #60343
    marions
    Moderator

    Kris…you just know how to make us smile.
    Hugs,
    Marion

    #60342
    lainy
    Spectator

    Kris. it’s no wonder they lost you, no one recognized you being half shaved. If there is a next time ask for a mohawk!!!!

    Pam & Lauren I am so sorry you had all those krappy Nurses. How much does it take to have a little sensitivity? I would write a note, but that’s me. As one gets older one complains more! Hope yu get a ton of good reports!

    #60341
    marions
    Moderator

    I remember my husband telling me that his modesty went out the window with this disease. But then again he was much older than our Lauren.
    I understand that competency supersedes the consideration of modesty however; I strongly believe that there also is room for being sensitive to the patient’s needs.
    Pam, I would share my thoughts with the physicians and nurses along the way and certainly before Lauren’s next procedure. By acknowledging the difficult and stressful tasks of their profession you might just come across someone with an understanding heart.
    Hugs,
    Marion

    #60340
    kris00j
    Spectator

    Pam:
    I’m so glad I made you laugh. We don’t have eough to laugh about these days.

    Oh, and I forgot: the first try for the embolization I was still in the hospital. They lost me and my parents were going nuts. They didn’t bother to tell any of us I had to be immobile for 4 hours and they stuck me in a back recovery room. My nurse went off duty and no one came to see how I was. It was horrible. I finally broke down and pressed the call button so I could get a pain pill after a while. It took about 5 minutes for someone to get to me. I’m not sure they knew where I was!!
    So now every time they take me back somewhere I specifically ask when my parents can expect to come back (or whoever I’m with), how long everything will take, etc….
    It was a mess!
    And I tell them paper tape only! I do that everywhere: I’m just used to that. Even when I have a blood test I say I want paper tape.

    #60339
    pamela
    Spectator

    Kris,

    You really crack me up. The funny thing with Lauren is that chemo made her lose all of her body hair so we really don’t know what they had to shave. Maybe tiny little hairs you can’t really see.

    Randi,

    I will make sure they know about all of her allergies next time. It is exhausting to try to double check everything.

    Love to both you lovely ladies,
    -Pam

    #60338
    Randi
    Spectator

    Oh geez Pam. I’ve had a few bad nurses and uncaring nurses at nursing stations, but nothing like this all for the same procedure!! Don’t they put little color coded bracelets on Lauren to say what she is allergic to? Procedures are bad enough without nurses treating her like she wasn’t there or a person at all!! Glad it’s over and hoping for the best for Lauren as always.

    **Hugs**

    #60337
    kris00j
    Spectator

    Pam: I read your response after I sent the first note. I am so glad I’ve been so out of it I don’t even remember them shaving me! Here’s a chuckle for you about my experiences: I had no idea I was going to get shaved. When I woke up the dr. told me I was shaved. But when I went to get changed I discovered they only did half! That happened 2 times. I told them to just shave the whole thing the 3rd time but they didn’t. One of the few things I’ve gotten a chuckle about. My ex boyfriend and I got a huge chuckle out of it. :D
    Kris

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