Looking to connect with others facing this disease

Discussion Board Forums Introductions! Looking to connect with others facing this disease

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  • #2227
    mea
    Spectator

    I’m joinging this group to communicate with others facing the same disease. I’ve searched for local support groups but can’t locate anything specific to liver cancers. I’m an 11 year survivor of Non-Hodgkins Lymphoma. I was diagnosed with Cholangiocarcoma almost 2 years ago, they removed the left lobe of my liver at that time. I’ve been getting CT Scans every 12 weeks for the past 2 years and the scan a month ago showed 2 areas the doctors were concerned with. Last week I had needle biopsies done and one of the growths was treated with Radio Frequency Ablation. My second growth couldn’t be treated that way becasue it’s too close to my stomach, so I’ll be having Cyber Knife Radiation done on that one in the next few weeks. The doctors orginally talked about the possibility of liver transplant but have now rejected that. I’m 54 years old and am attempting to care for my aging parents. All my friends and family seem to think that as long as I remain positive I can beat this, but I feel like I need to face reality and accept that I probably have very limited time left.
    I’m so glad I’ve found this group.
    Mary

Viewing 16 post (of 16 total)
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