May 19, 2014 at 4:03 am #81570
my sister is going to have surgery tomorrow. she has a tumor in both lungs. the doctor is going to remove the tumor from the one lung and than they will check it to see if it is cholangiocarcinoma or a different cancer. from what he told us if the test comes back negative for cc than he will remove the other tumor in a couple weeks. if it is cc than the only option would be chemo. this will be her 4th surgery in 4 years and 2nd in 6 months. it just won’t go away!!! i don’t know how she does it. to look at her and talk to her you would never know she even had cancer let alone what she has gone thru. we are trying to find some clinical trials. dr told us she has mcl1 mutation and to look for clinical trials to deal with that mutation. so far haven’t found anything.April 25, 2014 at 2:57 pm #81569
thank you very much for the information. i will pass it along to my sister.April 25, 2014 at 5:17 am #81568
Dear SallyPa, I can’t speak for lung surgery but I sure can give Cyber Knife a thumbs up. The tumor must be under 7cm and there cannot be too many although that may have changed as Teddy had his 5 years ago. It is a no brainer. They inject gold ‘seeds’ around the area so they know just where to aim the C.K. Teddy went in 4 times in one week and it was done! He was tired for a couple weeks after but that was it. We were so glad we did it as it bought him another 2 good years. Yes we need to hope that a new cure is around the corner….on a short block!April 25, 2014 at 3:04 am #81567
i just wanted to post the results of our second opinion. we met with dr today. i hope this will help jetcm with his wife. it may be something to discuss with her doctor. we were given a few options. one was because her tumors were small and located kind of in a cluster in both lungs and not scattered throughout her lungs that surgery could be done. it does have risks but don’t all surgeries? the second was for cyber knife which sounded like a good option to us. the third was chemo but he told us the two chemos i mentioned previously while being given for lung tumors he didn’t feel they would be too effective with cholangiocarcinoma tumors. finally he said to look into clinical trials. he said my sister has the mcl1 gene mutation. he thinks this mutation is the cause of her problems and if they can find an effective treatment to suppress this they may be able to help her more. so far i have found nothing on any clinical trials but i will keep looking. the bad news about the visit is the concern of a spot in her pelvis. they are hoping it is scar tissue from a surgery but if it is cancer he said the surgery wouldn’t be the primary choice for treatment.
to jetcm. please ask your wifes dr if cyber knife or surgery is an option. my sister has had 3 surgeries in about 4 years. they are rough but they have given her more time and a good quality of life. more time is what we hope for so that maybe better treatments and a cure can be found.April 22, 2014 at 3:10 am #81566
Hello, SallyPA so good to see you again! I think you are absolutely right in getting that other opinion~ Best of luck to your sister and please do let us know!April 22, 2014 at 2:50 am #81565
just wanted to post what my sisters oncologist has suggested for treatment of her lung tuners. he says he thinks the chemo’s vectibix and erbitux may be the best treatment. i have briefly looked up these chemos and they appear to be used mainly for colon cancer that has spread. my concern with these in my short time researching it is that both have side effects that refer to lung disease and difficulty breathing. we are going to get a second opinion about treatment options so hopefully i will have more info soon.April 17, 2014 at 6:41 pm #81564willowSpectator
My sister also has mets to lungs. I believe it is not uncommon. Luckily they are slow growing and not the main concern to the doctors. That said, my sister has tried various chemos to treat overall cancer. Never had any tx targeting g the lung mets directly.April 17, 2014 at 2:00 pm #81563
i dont know how common it is but my sister also has tumors in her lungs. the drs hadnt really been concerned until the scan she had last week. the tumors were very small. they now seem to be growing and more are appearing. i am not sure what the next plan is but i wanted to let you know that you are not alone in this. i hope and pray things work out well for your wife. when we get a plan i will post it.April 17, 2014 at 4:14 am #81562fantastic4Member
I had lung metastasis at time of diagnosis, as well.April 16, 2014 at 9:02 pm #81561dukenukemMember
When I was diagnosed, CC had already metastatized to both lungs and to lymph nodes.April 15, 2014 at 2:08 am #81560marionsModerator
jetcm……we have had plenty of reports of CCA lung metastases including that of Milena. As Lainy has mentioned, the search function will reveal all – it a bit much to read, but allows for a great overview.
Often times the physician will not treat the metastases unless he/she may deem it necessary to intervene with surgery or radiation.
MarionApril 14, 2014 at 7:20 pm #81559
Hi, JETCM, If you go to our search engine at the top and type in Lung Mets posts will pop up from those who have had the Lung Mets. Wishing you the best of luck.April 14, 2014 at 7:04 pm #81558milenzzSpectator
I noticed that no one has responded, so I figure I’d put my two cents in. I’m not sure how common this may be, but my mother after doing so well on chemo and then taking a break developed small tumours on her lungs as a result of CC. The doctors did warn us that this could potentially happen (so I’m assuming it is common) and low and behold they were right.
Unfortunatley my mother passed a month in a half later (not to discourage you or your wife) so I’m not sure what treatments are being used to target lung metastasis. My mom was originally on gem/cis and did really well, she took a two month break and that is when the lung metastasis happened. The doctor recommended she start Xeloda as he felt her body was to weak to withstand anymore chemotherapy and that it would decrease her quality of life. The xeloda proved to not work on my mom as she stopped taking it about a month before she passed (it had some bad side effects for her and ultimatley did nothing to the cancer).
Please let me know if you have any additional questions. I would be more than happy to help as much as I can
MilenaApril 14, 2014 at 1:58 am #9821jetcmMember
I have yet to see lung metastasis from cc mentioned on this discussion site.
That is what my wife has. Is it not very common?
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