LY2801653 clinical trial
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- This topic has 52 replies, 14 voices, and was last updated 10 years, 11 months ago by marions.
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October 12, 2013 at 6:14 am #70396kris00jSpectator
I actually don’t know about cc patients, but I have met with a couple of the colon(?) cancer patients, and except for dehydration because she won’t drink enough, we all seem to be doing well.
I have met cc patients, but their numbers weren’t good enough for the trial. I don’t understand that. If someone is sickly but wants to attempt the trial anyway (due to lack of options) I think they should be allowed to be a guinea pig to see if it would reverse the progression in severe cases. But the drug companies call the shots.October 12, 2013 at 2:49 am #70395reginaMemberWow, that’s wonderful!! Do you know about how the rest of our “kin” are doing on the trial?
Enjoy chemolessness!
ReginaOctober 9, 2013 at 5:30 pm #70394karenSpectatorFantastic Kris! So happy for you.
October 8, 2013 at 8:09 pm #70393kris00jSpectatorLainy, I am NOT normal! That’s why I put things in quotes!! lol
October 8, 2013 at 5:25 pm #70392lainySpectatorYou normal, NEVER! Oh you mean with the Trial and CC! HA, HA
That is such good news I have had good feelings about this since the get go. I am so over the moon for you, you know that. Think I will celebrate YOU tonight! Love you!October 8, 2013 at 4:41 pm #70391kris00jSpectatorAn update on the trial: I am 6 cycles in. A cycle is 28 days. I just had another CT Scan and there is shrinkage! It is 4mm smaller. That’s great news since the drug is built to stabilize the cells! And the CA19-9 is lower again! I’m in the “normal” range! Yeah!
The side effects are… I’ve begun losing my hair, but I still have tons left. I was worrying about going bald, but have decided to stop worrying. And my left ankle area is swollen and does not go back down. That’s it. I’m extremely happy with this trial!!July 29, 2013 at 4:06 pm #70390kris00jSpectatorI don’t know when this will go to phase 2. They are not getting a full allotment of cc patients. I think they had 5 people last month. And one had to leave the study due to health issues.
I myself am having a great response to this. The cancer cells are stable and my blood work is wonderful! They check kidney functions, too. No probs. the only issue is a slight effusion at the bottom of my heart. We are watching that.
I’m hoping there’s enough data to continue this and possibly get to phase 2 soon.July 29, 2013 at 3:22 pm #70389pcl1029MemberJuly 29, 2013 at 11:22 am #70388ghannam80MemberThat is great news , I hope you all the best.
Any idea about approval cycle for those medications which I hope will work for the benefit of humanity and every great member of this website?July 15, 2013 at 7:22 pm #70387marionsModeratorKris….excellent and exciting news. I am thrilled for you.
Hugs,
MarionJuly 15, 2013 at 6:53 pm #70386gavinModeratorYay!!! Great news Kris! Looking forward to hearing more good news from you as well!
July 15, 2013 at 6:24 pm #70385scheitrumcSpectatorWonderful news. So happy for you. I look forward to many great updates.
Way to go…..
CarlJuly 15, 2013 at 4:34 pm #70384kris00jSpectatorEnd of cycle 3 and results are in… CA19-9 is NORMAL!! 35.7!! Weight is still climbing. Doc is happy! So am I! My new clothes are upset, but that’s life.
No ct this round so have to wait another 4 weeks to find out, but everything points to stability and inactivity.
Onc gave me a prescription for my face and its better. I’ve been washing my hair with Selsun Blue and the scalp is better, too. Still have some pimply itchy things, but nothing like it was. I also went back to washing my hair almost every night. I have been trying to do every other day for the past 5 years, but I guess my new skin type says “CLEAN”!! So I will!
The swelling is better, too. Still swollen in morning… Enough to change the fingers of my rings, but after a couple of hours, they are back to normal.
I will take these minor discomforts any day!June 1, 2013 at 5:00 am #70383lisacraineSpectatorKris, sorry to hear this. Can you take Benedryl or something to help with itching ?
Love ya
LisaJune 1, 2013 at 2:08 am #70382kris00jSpectatorNew side effect: my feet are HUGE by the end of the day! And BUZZY!! And the eruptions on my face and scalp are worse and itch like crazy! Still not bad enough for me to quit, and hopefully not enough to have them stop it. I find out Monday. Maybe they can lessen the dosage….
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