LY2801653 clinical trial

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  • #70396
    kris00j
    Spectator

    I actually don’t know about cc patients, but I have met with a couple of the colon(?) cancer patients, and except for dehydration because she won’t drink enough, we all seem to be doing well.
    I have met cc patients, but their numbers weren’t good enough for the trial. I don’t understand that. If someone is sickly but wants to attempt the trial anyway (due to lack of options) I think they should be allowed to be a guinea pig to see if it would reverse the progression in severe cases. But the drug companies call the shots.

    #70395
    regina
    Member

    Wow, that’s wonderful!! Do you know about how the rest of our “kin” are doing on the trial?

    Enjoy chemolessness!
    Regina

    #70394
    karen
    Spectator

    Fantastic Kris! So happy for you.

    #70393
    kris00j
    Spectator

    Lainy, I am NOT normal! That’s why I put things in quotes!! lol

    #70392
    lainy
    Spectator

    You normal, NEVER! Oh you mean with the Trial and CC! HA, HA
    That is such good news I have had good feelings about this since the get go. I am so over the moon for you, you know that. Think I will celebrate YOU tonight! Love you!

    #70391
    kris00j
    Spectator

    An update on the trial: I am 6 cycles in. A cycle is 28 days. I just had another CT Scan and there is shrinkage! It is 4mm smaller. That’s great news since the drug is built to stabilize the cells! And the CA19-9 is lower again! I’m in the “normal” range! Yeah!
    The side effects are… I’ve begun losing my hair, but I still have tons left. I was worrying about going bald, but have decided to stop worrying. And my left ankle area is swollen and does not go back down. That’s it. I’m extremely happy with this trial!!

    #70390
    kris00j
    Spectator

    I don’t know when this will go to phase 2. They are not getting a full allotment of cc patients. I think they had 5 people last month. And one had to leave the study due to health issues.
    I myself am having a great response to this. The cancer cells are stable and my blood work is wonderful! They check kidney functions, too. No probs. the only issue is a slight effusion at the bottom of my heart. We are watching that.
    I’m hoping there’s enough data to continue this and possibly get to phase 2 soon.

    #70389
    pcl1029
    Member

    Hi,

    Here may be your possible answer.

    http://clinicaltrials.gov/show/NCT01285037

    God bless.

    #70388
    ghannam80
    Member

    That is great news , I hope you all the best.
    Any idea about approval cycle for those medications which I hope will work for the benefit of humanity and every great member of this website?

    #70387
    marions
    Moderator

    Kris….excellent and exciting news. I am thrilled for you.
    Hugs,
    Marion

    #70386
    gavin
    Moderator

    Yay!!! Great news Kris! Looking forward to hearing more good news from you as well!

    #70385
    scheitrumc
    Spectator

    Wonderful news. So happy for you. I look forward to many great updates.

    Way to go…..
    Carl

    #70384
    kris00j
    Spectator

    End of cycle 3 and results are in… CA19-9 is NORMAL!! 35.7!! Weight is still climbing. Doc is happy! So am I! My new clothes are upset, but that’s life.
    No ct this round so have to wait another 4 weeks to find out, but everything points to stability and inactivity.
    Onc gave me a prescription for my face and its better. I’ve been washing my hair with Selsun Blue and the scalp is better, too. Still have some pimply itchy things, but nothing like it was. I also went back to washing my hair almost every night. I have been trying to do every other day for the past 5 years, but I guess my new skin type says “CLEAN”!! So I will!
    The swelling is better, too. Still swollen in morning… Enough to change the fingers of my rings, but after a couple of hours, they are back to normal.
    I will take these minor discomforts any day!

    #70383
    lisacraine
    Spectator

    Kris, sorry to hear this. Can you take Benedryl or something to help with itching ?
    Love ya
    Lisa

    #70382
    kris00j
    Spectator

    New side effect: my feet are HUGE by the end of the day! And BUZZY!! And the eruptions on my face and scalp are worse and itch like crazy! Still not bad enough for me to quit, and hopefully not enough to have them stop it. I find out Monday. Maybe they can lessen the dosage….

Viewing 15 posts - 16 through 30 (of 53 total)
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