Mayo Clinic visit…..a big disappointment
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Lainy, I wish I had half the “gut 101” training that you have, and the love that you have in your marriage. Thank you for your words of encouragement, now and always.
Linda
Linda, you are right not to wait I always say listen to your “gut” and it will guide you all the way, it has for me. I gratuated from “gut” 101!
Thanks all for your support. I mentioned cholangitis to both my PCP and the Mayo Dr., but by PCP didn’t really know what to do, and the Mayo Dr. said just to take pain meds. I mentioned a blockage also and he said if you get a blockage, you will turn jaundice and then the drs. can deal with it then.
I know he couldn’t treat me (my referral didn’t allow him to), but when I asked if I should have it checked out, he didn’t offer any positive opinions on that. That’s what I was dissappointed about also. Now I need to go to another oncologist and get his opinion about further treatment on this point, not to mention I’m not ready just to wait until major things start to happen.
As far as my husband goes, he really only likes to get involved if things go well. And if it appears that it might be difficult for him in some way, he wants out. Sometimes I feel that I should have listened to my family long ago, and divorced my husband. Then maybe I would have someone else more caring in my life who would want to take care of Kevin when I’m gone. Jim just thinks of all the negatives and rarely of anything to do with anyone else. He has his own issues and dwells on them more often than anything else.
Linda
It’s very important that your pain issues are addressed. There is no reason to be in pain when there are good meds out there. Did they mention that there could be a blockage in the bile ducts or cholangitis that may be causing the fever?
Wishing you the best.
Linda we are so sorry your Mayo visit did not turn out to be what you were hoping for. I think the Doctor did very well. I can see where he wouldn’t prescribe anything for you as he will not be the one caring for you. Like Bz said at least you have a new plan in place. As for your husbands concerns perhaps you can bring a social worker in to talk to him and allay some of his fears. Stay strong!
Linda-
I am so sorry the Mayo referral was a bust. I hope you find someone to take care of your discomfort. I think that is paramount to everything else.
Linda,
Sorry that your visit to Mayo didn’t have a more positive outcome. But, as you yourself said – knowledge is power. It appears that you have already formulated the next plan and are ready to put it into action.
I would stress that you have immediate symptoms (pain and discomfort) that you need addressed when talking to the office staff.
Take care,
Bz
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