Metastatic cholangiocarcinoma with hepatic and nodal involvement
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Sally….The NCI has set forth guidelines for the collection of biorepositories for numerous cancers. This link may be of help to you:
http://biospecimens.cancer.gov/patientcorner/faq.asp#q2
All my best wishes,
MarionHi
Thank you to all for responses.As we had never heard of cholangiocarcinoma we think that finding out more about this form of cancer would be good . Any research may or maynot connect the four close family members cancers which are
1 Melanoma – Ankle We have applied for Death cert to see what was listed as cause of death
2 Testicular Cancer (Medical records were obtained and T cell lymphoma was mentioned)
3 Lung which spread to brain (Believe Dr said it was adenocarcenoma that can occur in the lung of a non smoker as well)
This female was given drugs in the 1950’s to prevent misscarriages. Could be DES but unable to get the medical records as they date too far back
4 Cholangiocarcinoma Female passed away March 2011
Could be all unrelated cancers but seeing cholangiocarcinoma is rare will be interesting to find out more on this and if the other 3 family members cancers are in anyway connected to Cholangiocarcinoma
Sally
Sally….Cancer is around us, but science has not proven a genetic link to this disease.
All my best,
Marion“Unusual” would be putting it lightly. Sally, this is a very rare cancer compared to most others you hear about. Most people think Pancreatic cancer is rare at approx 30,000 new cases in the USA each year, but Cholangiocarcinoma only has 2 to 3 thousand new cases each year. Very little research done on it and it is only in the beginning stages of being understood. I went and found the post by Jennifer. She apparently had a hard battle. Wish she could have posted more but I understand how hard it is sometimes to even want to turn the computer on. Fortunately for me, I have it on in front of me every day 8 hrs a day at work, so I leave this webpage open and just visit every now and then. Those on this sight will confirm that there is no “standard” connected with this form of cancer. The only standard, so to speak, would be it’s ability to be totally unpredictable from person to person. It is wonderful that you are so determined to learn about it.
Hello
On doing a search on the forum I have found a posting by my family member.Its in the new member posting from Jennifer
She was diagnosed in 2009 and passed away March 2011
Still would like additional information on this form of cancer
Is it an unusal cancer?
There are cancers in the family that are different types of cancer
Curious if these cancers even though different are connected
Sally
Sally…..a warm welcome from me also. As Byron has mentioned our members will gladly help you along. Please, ask.
All my best wishes,
MarionSally,
Welcome to this board. The folks here have volumes and volumes of experiences with this disease. Spend some time browing through all the links and info on this website.
Do you know and more details about your relative? How long did they fight the cancer? Where were they treated? What kinds of treatment? etc etc
Again, welcome to this site. Wonderful people here.
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