Discussion Board Forums Surgery, Resection & Transplant Treatment Options Miraculous call from Dr. Kato for ex-vivo resection transplant

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  • #68669
    lulu07
    Participant

    Darla…First of all I will be thinking of you and praying for a successful surgery…Dr. Kato seems to be the go to for this disease. Yes, most definitely apply for dissability…it can take time…if it is not going quick enough you can call and speak to someone…I did and a very nice women told me if I would fax my Cat scans, office notes and surgical reports it would speed up the process and it did! You may have to make some noise to get them moving…the squeaky wheel thing…as far as lodging for your family…I had my resection at Mt Sinai in NYC and I know they have a few rooms at a hotel not far from the hospital where they have deeply discounted rates…I believe they even have a few rooms in the hospital set up like small efficiency apartments….I would call NY Pres or go on their website…and see if they offer any of these things…I would think they do…another good thing NYC is not such a big tourist attraction right now so some hotels may have cheaper rates….Hope some of this helped…Best of luck to you for a successful surgery and speedy recovery!
    Nancy

    #68668
    marions
    Moderator

    Darla, I am so excited for you. Yes, I believe that you should apply for disability. Enclosed you will find some previous postings which may be of help.

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1129
    http://www.ssa.gov/dibplan/dapply.htm
    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=2288
    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=8186
    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7019

    Hoping for others to chime in also.
    Oh, Darla, fingers and everything possible is crossed on this end.
    Hugs,
    Marion

    #7883
    sdcarlson89
    Member

    To all my cc friends and family,

    I first of all need to apologize for not posting on here for a couple of months. I hope that everyone had a nice Christmas and the New Year is full of blessings for each one of you!!

    I recently got a call that I qualify for an ex-vivo procedure in New York. I just had my second CT scan on Friday January 25th. Dr. Kato wants to look at my scan and then schedule a surgical consultation. I am going to try to schedule my appointment for a Friday and then my surgery for the following week, to save on transportation since I live in Michigan and will need transportation and lodging. If anyone has been to New York and has any advice, it is greatly needed. We are going to contact Angel Flight for transportation to acnd from the Hospital. My husband is going to come with me but the expenses of hotels are high for the area and transportaion to and from hotel to hospital will be expensive…any advice would be greatly appreciated since we will be down to one income, and I have no sick,personal, or vacation time left, any advice is greatly appreciated. Do you think I should apply for disability?

    Thank you and God Bless you all!!!

    Darla

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