Mistletoe
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Hi Gavin,
It’s good to hear from you too, and I really hope that your dad is still doing really well and fighting the CC. I’m so glad the PDT seems to have been positive for him.
I did pass on your dad’s experiences. My mum discussed all options with her oncologist – but it seems the metal stent (and other underlying problems – possibly secondaries as she has never had her cancer formally graded) has precluded any radiation therapy/PDT, surgery etc. I understand her only option is chemo and they gave a 30% chance of success of this and a 6-9 month prognosis – whats more, they couldn’t guarantee chemo can extend good quality of life or her life at all for that matter. To be quite honest, since this meeting, I think she has given up some hope, but has agreed to go to have mistletoe injections at Park Attwood Clinic as a last ditch attempt to fight the cancer http://www.parkattwood.org/. There is some encouraging outcomes from this treatment, and we desperately hope it makes her feel positive again. I will let you know the outcome. Mistletoe injections work particularly well in conjunction with chemo and can work well on their own I understand – although we are aware that sometimes things will take their own course . Its quite a gentle treatment, so will be nice to try. My mum has quite a bit of faith in this treatment, because 8 years ago a friend’s husband was given same prognosis as her (ie months to live) with lung cancer – and no chemo was offered. He had intensive mistletoe injections and 8 years on is still surviving and cancer free. We pray for a miracle.
In the very least, we are so grateful that she has had some respite from feeling so unwell, since those horrible first days and weeks after diagnosis.
Take care Gavin,
Best wishes to you and your family, and I will keep you posted about the mistletoe in case it is useful for your dad.
WendyHi Wendy,
Good to hear from you. I’m glad to hear that your mum is feeling a bit better now and is able to do a bit more. I remember before that you were asking about my dad’s experience with his PDT treatment. Did you talk with your mum and her doctors about the possibility of PDT being an option for your mum?
I agree that quality of life is an important factor and this was something that my dads doctors talked about with us before he started his treatment. Can’t help with anything realted to mistletoe therapy as I’ve never heard of it before.
I hope it all goes well and I wish you and your mum the very best.
Gavin
If you enter “mistletoe” in the top bar under “Search Forum” (don’t need author) you will find a few discussions on this subject. I applaud your Mom’s decision in that she deliberated and came up with a solution best suited to her. I believe, it is of the utmost importance to allow the patient to make an educated choice and follow their wishes regarding treatment of the disease.
Good luck and my best wishes
MarionHi, my mum was diagnosed with CC in April this year. She spent 6 weeks in hospital and finally had a metal stent placed to drain her bilirubin. I’m pleased to say she’s feeling a lot better at the moment and is at home – not quite her old self, but able to do more than she did. However, her drs feel that she will have 6-9 month life expectancy and that chemo will only give her at 30% chance of prolonged life – and not necessarily good quality of life. She is concerned that she will feel worse with chemo and after a lot of deliberation, has chosen not to have it.
However, we have investigated Mistletoe therapy, and she has an appointment next week to discuss treatment – which could be intensive at first.
My question is, have any other CC patients here had this therapy, or do any families have experience of this alternative therapy, and has it improved an overall feeling of wellbeing and helped to fight the CC? Any other advice or experience you can give here would be really helpful.
Many thanks, and wishing each of you hope, strength and courage to fight this horrible disease. My thoughts are with you all.
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