Dear VWallis, I am so very sorry about your sister. It is wonderful that you got to spend the Holidays together making memories for a lifetime. It is so sad when anyone gets CC but somehow it makes me even more sad that it is hitting quite a few younger people. I know its easier said then done but be need to be strong for her and for her children. I always tell myself I go through a crisis very strong, I have time to fall apart later. I hope the ONC can get her more comfortable as that is the bottom line. In the meantime keep making those memories and share your love. Please keep us posted, we care.