My story, in case it helps…

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Viewing 15 posts - 31 through 45 (of 49 total)
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  • August 30, 2010 at 3:06 am #39832
    marions
    Moderator

    Hello Sharon and welcome to our site. Thanks for sharing your success story. That is quite an impressive reduction in tumor size you have achieved. Congratulations. The beam radiation in combination with the various chemotherapies appears to be quite effective for you. I just love these stories, because it gives hope to many.
    Keep up the good news and please, continue to share with us. By the way, do you have big plans for your retirement?
    Best wishes,
    Marion

    August 30, 2010 at 2:30 am #39831
    sharon-field
    Member

    Andy, I’m so glad to read your story. I have had cc about a year longer than you—have had NO problems with my bile ducts, but my original tumor was 13 1/2 cm. I can’t have surgery due to involvement with the great vessels of the liver. I have had cisplatin, gemcitabine, 5 fu, Xeloda, & radiation 2 times. I was fortunate to use the big Novalis machine at the University of Nebraska. No side effects at all from the radiation. What a blessing. So far so good & the tumor is 71/2 cm the last CT I had in early Aug. I am still working full time & have a goal set for retirement in 2 years. I hope I am so fortunate to see that day. Sharon Nebraska USA

    August 27, 2010 at 6:46 pm #39830
    krisi
    Spectator

    Wauw – what a fantastic description to read. I just logged on to the forum with the objective to write a post about experiences with inoperable cancer and the time that treatment keeps others up and going. I have been told that I will be having chemoterapy for the rest of my life – hopefully with some breaks inbetween. I plan to proof this plan to be wrong!
    Reading your story Andy really makes my hopes even bigger. I’m young (37) and have no symptoms at all so I really want to proof the plan to be wrong.
    I myself am in the proces of identifying what can help me and boost my body to work better during the chemoterapy. I have some food allergies but I will find a way to solve this.
    Thank you again for your encouraging post.
    Good luck.

    Krisi

    August 18, 2010 at 5:50 pm #39829
    John Thomas
    Spectator

    Andy,

    We are sharing the same time frame for this disease. and also a similar mindset. I feel that without the option of surgery, the only choice we have is treat this as a chronic disease. I am having PET and MRI this week, which I know will confirm my belief. Best wishes for your journey.

    John Thomas

    August 17, 2010 at 5:31 am #39828
    capodad
    Spectator

    Andy, congratulations! That is fantastic ! Your story gives hope to us all. Thank you. I am going to print this out and show it too my Wife who’s tumor (Klatskins) sounds similar to yours. Gary

    July 12, 2010 at 3:53 pm #39827
    lance21
    Spectator

    Andy,

    Thank you SO much for sharing. It means so much to hear success stories. I certaintly wish you continued good health! I will share your story with my mom, as well as your supplement program you’ve embarked on.

    Best Wishes,

    Marni

    July 11, 2010 at 9:46 am #39826
    andy
    Spectator

    Hi All,

    Thanks so much for your positive responses. It really does make a difference to know others care and are supporting you.

    For those that want details of what we did in terms of supplements and diets, I’ve now posted them here:
    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=4557
    There’s a lot that others have already posted, but I hope the references and sources are useful.

    Best wishes to all for a positive future!

    July 10, 2010 at 4:10 am #39825
    linda-z
    Spectator

    Andy,

    thank you so much for your story. It was very uplifting and we can all use more of that!

    Please do post those supplements that you were taking on the alternative health section as Kris mentioned. I know I’m interested and I’m sure many others would love to read about them.

    Thanks again and welcome to our site. Please come back often to share your knowledge and help with others.

    Linda

    July 9, 2010 at 9:46 pm #39824
    marions
    Moderator

    Hello CM and welcome to our site. Stories like Andy’s give hope and allow us to stay realistic and optimistic. I am wishing for a happy 1st Birthday Party. Is it a boy or a girl?
    Best wishes,
    Marion

    July 9, 2010 at 9:09 pm #39823
    cm
    Spectator

    Andy,
    Your story is fantastic. My husband was recently diagnosed with inoperable CC. We have a little baby who will be 1 year this weekend. Your story gives us such inspiration we will celebrate her birthday with hope in our hearts.
    Thank you so much for sharing.
    C

    July 9, 2010 at 5:41 pm #39822
    andie
    Spectator

    Hi Andy,

    Thanks for sharing your wonderful news. My Dad was diagnosed in April with inoperable CC due to location and is being treated at the QE in Birmingham, is this where you were treated? My Dad is under Dr Bramhall. He was due to start Gem/Cis last month but his metal stents decided to block making his bilirubin too high. He is currently in the QE after having his stents unblocked and extended. Your story sounds very much like my Dads in regard to tumour location and size. I really hope my dad responds to the treatment like you did. Reading your story as given me hope and I’m going to show it to my Mom and Dad.

    Could you tell me what supplements you take and did you take them whilst on Chemo? My dad takes Omega 3 at the moment and has started drinking hot water and lemon as we read it was a natural bile thinner.

    Look forward to hearing from you

    Best wishes to you and your family

    July 9, 2010 at 5:39 pm #39821
    gavin
    Moderator

    Hi Andy,

    Welcome to the site, and thank you so much for sharing your amazing story here with us all. Hoping that your good news continues for you and looking forward to hearing more about it.

    Best wishes,

    Gavin

    July 9, 2010 at 5:31 pm #39820
    marions
    Moderator

    Andy…..I would also like to chime in and thank you for sharing this uplifting story. We can never get enough of hearing good news.
    Best wishes,
    Marion

    July 9, 2010 at 4:47 pm #39819
    devoncat
    Spectator

    Andy,
    What wonderful and inspiring news. It would be a tremendous help if you posted the 15 supplements you took under the alternative health section. I am sure several of our members would find it very helpful.

    Congrats again.

    Kris

    July 9, 2010 at 2:29 pm #39818
    hollandg
    Member

    Andy
    That’s a wonderful inspiring story. I’m delighted for you and your family.

    Gerry

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