My update not positive

Dear Hollie and Sophie,
My warmest wishes and best thoughts are to both you. Xeloda (with a US doctor prescription) can be purchased legally and above board in Canada for a fraction of the price through the internet, mailed to your home – there are many companies just make sure that you pick one approved by Canada Health. I am Canadian (my husband is Aussie) but he’s being treated for CC in USA as it’s the best place in the world for treatment. Mayo Phoenix is doing some drug trials for CC which have had some encouraging results.

Hang in there.

Danielle

PS – in Australia for example, the patient pays 32.60 (as opposed to 4000) for a course of Xeloda…but only for breast and colon cancer…

Sophie and Holly,

May God hold both of you tightly in his hands. My heart goes out to you and your family. You are all in my thoughts and prayers everyday.

You are not alone in this journey.

Hugs to you both!
Pam

Hollie,
I,too, an following along, keeping up wioth Sophie’ s trials. I just want to send my love – to all of you, let you know that I am praying for Sophie.

Joyce C.

Hi everyone,

I have read and re read all your posts to myself and my Aunt Sophie. She is so touched and says thank you to each one of you for your concern and support. At this time the medicine is still not approved and she is still waiting. I am praying it is approved because if it is not she will not fight the battle with chemo any longer. THe treatments have already stopped but she would consider more treatments if there was something to do for the ascites. She will be drained again on Tues.
For now we are jsut winging it as far as who is with her and where she will be. Her daughter and little grand daughter are there now so that gives me much comfort. They will leave on Sunday and then my sister is going down for a visit and I am hoping my AUnt will come up here to stay in Truckee again for a month or so. SHe has two beloved pets that need new homes so it is hard all the way around.
Just thought I would touch base and say Hi. We have six feet of fresh snow to play in here in Truckee. My kids have been out on snow days all week and it is beautiful but a lot of snow to deal with. I will be in touch as soon as we hear something on the avastan.
Jeff, she has been trying the ibuprofin and we will see if it helps. When she goes to see her doctor next she should mention the steroids. Also thanks for the nice words on me being a good niece..My Aunt has been so suportive and amazing to me that I feel more like she is my Mom. We really have a great relationship and she is also super close with my two kids Ben and KAte (9 and kate is 7)…Hope you all had a nice day and will have many more to come. Love, Hollie

Hi Hollie,
Sophie is always especially in my prayers when I pray for everyone here on the cholangiocarcinoma board. I hope you figure out something that will work for all of you and will allow Sophie to be taken care of. I live 18 hours away by car – I wish I was closer to help out.
Loving you all,
Lisa

Hollie…..thanks so much for keeping us informed about your Aunt Sophie. Please, tell her that she is missed on this board and much loved.
I recall Sophie writing about her living alone and I agree, this is the time when someone should be with her or, very close by. What a wonderful, caring, and kind Niece you are. I know that you will come up with the solution best for all. I am hoping that Jeff’s idea of ibuprofin and possible steroids will be agreed to by the physician and I so much hope for Sophie to be more comfortable.
All my love,
Marion

Hi…So things are not too good right now. My Aunt is all alone for a week now. She is to the point where she really should not be alone at all and we as a family need to get this figured out quickly. I live 8 hours away and her daughter is 3.5 hours away. She has neighbors and a few friends that pop in to say hi and check in, but I feel it is crucial to get a plan in place. Not only for physical reasons but also mental. She is so down and voices that she would like this to be over. It is just killing me.. The good thing is that she definatley still loves a good laugh and really gets a kick out of some of my stories. She just lives to hear stories when we talk on the phone.
At this point the initial answer for the medicine has been denied. The doctor is doing what Tess mentioned and I pray it is approved ASAP!!! If it is not, due to the misery of the ascites she will not be continuing on with treatment. Only drains to relieve pressure. This is becoming more stressful by the day and I know you all understand. You are all amazing people. I mean it! I feel your love and sincere concerns and it is just huge. So many of you have suffered such loss and are so supportive and strong to people struggling.
Jeff, I wish my Aunt would take the ibuprofin and I am going to encourage it. Thanks so much for the info and just know you ( and all here) are always on her mind and asks me for updates and prays for you all.
Thanks and love to all, Hollie