Need new options…
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Charlene….Definitely speak with Dr. Gores. He is a specialist, numerous publications carry his name and he is highly regarded in his field.
I understand your concern about the passing of time without any treatment in place, but you are doing everything right by gathering several opinions.
Things will fall in place real soon.
All my best wishes,
MarionHi Charlene, prayers going out to you and your Dad. This is just the hardest part, the waiting! We do have patients on our site who have had the tumors shrunk and gone on for surgery. Everyone is so diffrent but you want to make sure all the t’s are crossed and i’s are dotted. Just hang in there a little longer and know that you can always call Dr. Gore if not satisfied with what you hear. I hope for you all that it is soon so that you can set plans in motion!
Charlene-Sorry about your news. I am a CC survivor because of Dr. Chapman and a 2 liver transplants. I was very blessed to be put in Dr. Chapmans care, he believes it is an acceptable method of cure for CC. I know that if Dr. Chapman doesn’t think your Dad is a candidate, he will work on “PlanB”. The man is one of the most amazing doctors you will encounter, he has a heart. He is my hero.
Please read my story at thetelegraph.com under christmas miracle, there is HOPE!!!
Lots of prayers-CathyHi,
If you did make an appointment with Univ. of Chicago,then I will suggest to wait and see what are their opinions and go from there. They use team approach for treating CC so that is good.
Yes, in general, if the chemo treatment works(ie: pt. has complete response to the treatment and the tumor is “completely” gone;or the patient has partial response to the treatment and the tumor has shrink >25% in size;or the patient has a “stable” response to the treatment,that means the tumor has not change in sizes;all the above are good news to hear.)
Usually speaking,if surgery can be performed,they will do surgery first or the doctors will use neoadjuvant chemo or radiation treatments to shrink the tumor to increase the odds of potential cure then they will perform CC resection if the location of the tumor ,health and age of the patient and other risk factors are in the patient’s favor.Currently liver transplant is not recommended as an acceptable treatment of choice of CC treatment under existing medical guidelines in the States.
God bless.Just received a call back from Mayo … My dad is not a candidate for liver transplant because his tumor is too extensive — 5 cm.
Disappointed, but still looking for more options.I put in a call with Dr. Chapman at Barnes Jewish… Hoping we will get better results.
Here’s my real issue:
It’s been over a month since we have heard that nasty word “cholangiocarcinoma,” and yet we have no treatment plans in place. I am so frustrated! I need to get my dad to see an oncologist RIGHT away to get some plans together.First step, call University of Chicago and set up an appointment with their oncologist.
After that, should I still schedule an appointment to see Dr. Gores at Mayo? His nurse said he would still be willing to meet with my dad and talk about treatment options.
I saw on a few different posts that chemo may be able to shrink the tumor down to put him in the resectable category… Is that true? Has that happened for any of the members out there?
Also, if my dad begins chemo or radiation treatment, will that prevent him from any other surgical options (i.e. resection or transplant) later down the road?
Need prayers and a shot of hope!
THANKS…
Charlene
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