Neuropathy

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  • November 3, 2012 at 11:12 am #66244
    marions
    Moderator

    You are welcome, Karen and Jim.

    Karen, given the fact that the above link is helpful to you I should then also post it in a more prominent place on our site.
    Thanks for the hint, Karen

    Hugs,
    Marion

    November 3, 2012 at 2:31 am #66243
    jim2012
    Member

    Thanks everybody for their comments.

    Jim

    November 3, 2012 at 12:30 am #66242
    karend
    Spectator

    Marion,

    Your NCCN link is very helpful! I will be sure and use it when doing chemotherapy teaching with patients.
    Thank you!

    Karen

    November 2, 2012 at 9:53 pm #66241
    marions
    Moderator

    Jim…this link might of use to you:
    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=63040#p63040

    Many drugs and supplements are being tested to prevent peripheral neuropathy in patients with cancer. Results have been mixed. More research is needed. Some prevention treatments being tested are:
    http://www.nccn.com/component/content/article/61/1722.html
    Hugs,
    Marion

    November 2, 2012 at 8:09 pm #66240
    gavin
    Moderator

    Hi Jim,

    I can’t help with any personal experiences about neuropathy, but here is a link that my be of use and interest to you.

    http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Othersymptomssideeffects/Peripheralneuropathy.aspx#.UJQoFcXtR9g

    Best wishes,

    Gavin

    November 2, 2012 at 2:50 pm #66239
    pamela
    Spectator

    Hi Jim,

    My daughter, Lauren was on Gem/Cis for a long time and never had neuropathy. Only hair loss and low platelets. She has been on Xeloda and Oxaliplatin for some time now and did have some neuropathy with Oxaliplatin which is in the same family as Cisplatin. Just this past week she had a terrible allergic reaction as soon as she started getting her Oxaliplatin. We have not spoken to her oncologist yet to see what he is going to do about it. Her neuropathy would mostly be in her hands and her tongue bothered her too. Her feet are bothered more by her oral chemo, Xeloda. Towards the end of her two weeks on Xeloda , the bottoms of her feet are very red, sore, and peely. We put a lot of lotion on them and as soon as she stops taking the chemo they get better. I know Kris on this site had bad neuropathy, so hopefully she will comment. I hope the Neurontin helps and you are feeling better soon.

    -Pam

    November 2, 2012 at 3:07 am #66238
    lainy
    Spectator

    Jim, sorry can’t help with Neuropathy except I know it is nasty! I do know you will get some responses to your question but in the meantime if you go to our Search button at the top and type in neuropathy a bunch of posts will appear on that big subject.

    November 2, 2012 at 2:55 am #7562
    jim2012
    Member

    I have really bad neuropathy in my hands and feet from Gemzar/Cisplatin. I finished 6 cycles back on 09/15/12. My Dr. has prescribed Neurontin 100mg to help with the neuropathy. Has anybody taken this and how did it effect you? Any comments would be appreciated.

    Thanks,

    Jim

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