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Valerie, please do not change anything without calling your doctor first! Teddy has been on Morphine and has been almost pain free. The only problem was that the Morph was giving him nightmares and hallucinations but we put him on Hadol (sp) 3 days ago and he has had 2 nights now of peaceful sleep. He does sleep a lot but who knows if it’s from the Morph or the Cancer. In fact yesterday for the whole day he was more up and bouncy than I had seen in 2 weeks. To me the bottom line is pain free, even if he has to sleep through it.
There are usually no symptoms until the Jaundice. That is why the CC is not found until later stages. We are so sorry you both have had to join this journey.
Please keep us posted.
P.S. Teddy takes 75mg of Morphine with breakthrough of 10mg as needed. He was using more breakthrough, like 6 times between his 12 hour doses of 75mg but when he started the Haldol it has now leveled to maybe 1 -2 breakthrough doses between his 12 hours. Perhaps the Haldol keeps him more calm so the pain does not get as intense. But whatever, it’s working.
Hi,vaustin
you can give the dilaudid 4mg every 2 hours AS NEEDED for the pain;not scheduled,or cut the pill in half and give 2mg scheduled;
If still too sleepy;call doctor to decrease the fantenyl patch to 75mcg.do not cut the patch in half. good luck.Lainy thank you for the kind words. First there were no signs of anything until her eyes turned yellow in July, then it was back and forth to the radiology department to get billiary tubes placed in her liver. First the left side, then jaundice got worse and they placed a tube in the right side. This then started leaking and she got an infection. In and out of the hospital for three weeks to treat. The surgical oncologist was not sure where the cancer orginated until they completed a lung biopsy on her, nodules had formed there and this is when the definate of the type of cancer was known. Since then we have had to cancel 2 oncology appointments due to hospitalizations for dehydration, vomitting, breakthrough pain, and infection. the cancer was already at stage 4 when discovered and had gone to lungs (though nodules are very very small). We are trying tofind the right breakthrough pain meds so she can do things during the day and not be a zombie. Currently it is fentenol patch 100 micrograms and delotted (sp) 4mg pills every 2 hours (pray this works). We are in Rochester ny and welcome any advice….
Dear Valerie, Welcome to our wonderful Family to you and your Partner. It is the shock of one’s life when first diagnosed, shock is putting it mildly. What we usually suggest is to read up on as much as you can as to be forwarned is to be fore armed. Once your Oncologist has a game plan in place you do get a sense of relief because something is being done. I am curious as to why it took 3 months from diagnosis to meet with the ONC. Where do you gals hail from.
I am glad you found us, sorry you had too. The best way to describe this “family club” is that they are the most loving and caring people from all over the World. Please keep us posted, we care.Hi Valarie,
I’m really sorry to hear about your partner. I’m only new to this site too, my Dad was diagnosed with cc in late August.
This forum is full of wonderful supportive people, some are those with cc, some are current carers or relatives or friends. Some have people that have already passed, while others are survivors that have beaten the odds. But we are all bound together by this horrible disease, and we are joined in a supportive way that only those touched by cc can be.
Welcome to our group, feel free to post questions, feelings, experiences or in fact anything you like. Answer posts from others, but just share in whatever way you feel most comfortable. We’d love to hear from you.
The people on this forum, and their various journeys are a great source of comfort and support, and sometimes even the humourous responses can make a cloudy day seem a little sunnier.
Cheers and hugs to you
Hello my name is Valerie and my partner was diagnosed with cholangiocarcinoma in July. She just celebrated her 48th birthday and are set to meet with an oncologist the 18th. Unfortunately she is already at stage 4 and the cancer has metasecized (sp?) to her lungs. I have no real support and looking here for some answers.
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