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  • #59027
    kirstie07
    Spectator

    Oh, thanks Gavin!!
    Yes, I can tell already that coming here to vent/shout/scream is going to be widely accepted by you guys!! Sadly, as you sad many of you have been where I am now, or on the way to where I am now….and will totally understand me!
    Thanks also for the link!

    Kirstie

    #59026
    gavin
    Moderator

    I forgot to say as well. Should you wish to, you can submit a question to Dr Giles here on the site. He is a licensed psychologist and has helped many of our members with many issues. He can be found here if you wish to submit a question to him –

    http://www.cholangiocarcinoma.org/ask.htm

    Gavin

    #59028
    gavin
    Moderator

    Hi Kirstie,

    You keep coming back here as much as you feel you want to. Go ahead and post as much as you want to and should you feel the need, you can shout, scream and vent away as much as you want to. Many of us have been where you are right now and you certainly will not be burdening us with your issues at all.

    I know that it’s not the same as face to face talking, but coming here helped me so much when my dad was ill and it helped me a lot to be around people who knew exactly how I was feeling and what I was going through as well.

    I hear what you are saying about the why, why wasn’t it diagnosed earlier. Unfortunately and in many instances with this cancer there are not many signs or symptoms that show themselves until it has progressed. That is the case for so many people and was also the same with my dad. It is not the case for everyone but sadly it is for far too many.

    We are here for you Kirstie and we care.

    Hugs,

    Gavin

    #59029
    kirstie07
    Spectator

    Thanks to everyone for your kind words…it really is nice to know that there is some support out there!! I started to think no-one had heard of this type of cancer!
    I guess I do need to stop trying to find answers and asking why, it isn’t going to help now! My biggest why that I kept asking is “why was this cancer not detected earlier in Mum” I have come to learn, that no matter when it was discovered/diagnosed…the outcome wasn’t going to change…..it just would have prolonged the agony of knowing she was dying! I’m glad, that in the end, my sister, brother and I were able to let her pass away at home, that was her only request, not to be in hospital. I’m also glad, in a way that she didn’t suffer in pain for too long!
    Again, thanks for all your kind words, it really is hard to find someone who really knows how you are feeling, what you are going through! I only have one friend who’s lost her mother so although she’s been a great support to me, I don’t really like burdening her with my issues, making her go through all her pain over again!
    xx

    #59032
    gavin
    Moderator

    Dear Kristie,

    I am so very sorry indeed to hear of the loss of your mum, please accept my sincere condolences. I know that words will not help but please know that we are here for you. I lost my dad to this cancer so I can relate to the pain that you are feeling right now. My thoughts are with you right now.

    Gavin

    #59031
    clarem
    Spectator

    Dear Kirsty,

    I am so very sorry that you lost your mum. There is so much support and understanding here that might offer you some comfort.

    Kindest thoughts,

    Clare

    #59030
    pamela
    Spectator

    Dear Kirstie,

    How unfair that this awful disease took your dear Mum so soon. I am very sorry for your loss. I hope in time that the shock of your Mum’s passing is replaced by wonderful memories of happy times. Bless you, Kirstie.

    Love,
    -Pam

    #59034
    darla
    Spectator

    Dear Kirstie,

    You have my deepest sympathy on the loss of your dear mother. My husband also passed quickly from this disease and I try to console myself in knowing that atleast he did not suffer for a long time. Keep her forever in your heart & memories. Thinking of you.

    Love & Hugs,
    Darla

    #59033

    Dearest Kirstie
    My heart goes out to you and I shed tears for you. Please understand this disease has no rhyme nor any reason. May I suggest you use your time to create a loving memory book of your mum, write down everything you think of about your special mum, try not to spend your time asking why … there is no answer.
    Thinking of you
    Sandie
    xxx

    #59035
    lainy
    Spectator

    Dear Kirstie, I am so very sorry about your beloved Mom. There are no wrods to describe how devasting this CC Monster can be. I do know that a ways down the road your wonderful memories will take over and they will be a Blessing to you. Please accept my heartelt Prayers and thoughts.

    From a book of blessings called “Benedictus” by John O’Donohue – Irish Poet & Philosopher
    When you lose someone you love,
    Your life becomes strange,
    The ground beneath you becomes fragile,
    Your thoughts make your eyes unsure;
    And some dead echo drags your voice down
    Where words have no confidence
    Your heart has grown heavy with loss.
    And though this loss has wounded others too,
    No one knows what has been taken from you
    When the silence of absence deepens.
    There are days when you wake up happy;
    Again inside the fullness of life,
    Until the moment breaks
    And you are thrown back
    Onto the black tide of loss.
    Days when you have your heart back,
    You are able to function well
    Until in the middle of work or encounter,
    Suddenly with no warning,
    You are ambushed by grief.
    More than you, it knows its way
    And will find the right time
    To pull and pull the rope of grief
    Until that coiled hill of tears
    Has reduced to its last drop.
    Gradually, you will learn acquaintance
    With the invisible form of your departed;
    And when the work of grief is done,
    The wound of loss will heal
    And you will have learned
    And be able to enter the hearth
    In your soul where your loved one
    Has awaited your return
    All the time.

    #6531
    kirstie07
    Spectator

    Hello,

    I’m here because I lost my beautiful Mum to this awful, horrible disease on Jan 31st 2013. I first came here to gain some understanding about this type of cancer…read a few stories, and tried my best to get my head around the diagnosis Mum had been given.

    I had intended to post a few questions about what to expect…..but I never had the time, Mum passed away just 18 days after diagnosis. 18 days is hardly enough time to prepare yourself to lose your Mum…but really how long do you need?? 18 days, 18 months, 18 years?? I don’t think you can ever “prepare” for it!!

    So, I’m still trying to gain some understanding about this type of cancer…..

    I feel like my world has shattered into a million pieces at my feet……I miss her soooo much!!

    Kirstie
    xx

Viewing 11 posts - 1 through 11 (of 11 total)
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