Hi everybody,
My name is Wendy. I am 41 years old and a mother of 2 little children. I have been fighting cancer since January 2011. I am suffering of intrahepatic cholangiocarcinoma and I have had several operations (liver resection, internal bleedings) and radiological interventions (such as Nanoknife treatments) in the last couple of years in order to remove the tumor.
Although the treatments seemed successful at times the cancer returned. Therefore I had to receive chemotherapy in order to be able to prolong the process and my life. In total I have received 16 chemotherapies (2x 8 chemo courses) with Gemcitabine and Cisplatin. Unfortunately it did not prevent the tumor from growing, leaving me with a dismal prognosis, again.
After a therapy pause of four months, I will probably start with a second line chemo therapy called 5FU next week. I had hoped to join a Belgium trial based on a FGFR gene mutation, but unfortunately my gene test came out negative.
Although the latest scan shows a growing tumor in my liver with growing metastases in my longs, I feel surprisingly healthy and vital. Therefore I am still desperately seeking for other options to turn the tide. Hopefully I can find them here with you! This site has already given me lots of extra information. I am glad that I have found you!
Warm regards,
Wendy