New to everything!
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Hi Elizabeth,
We have all felt what you are feeling & know what you ae going through. I am glad you found this site early on. Remember that everyone here will be with you every step of the way if you want us to be. You are lucky to have such a loving, supportive family. I hope you are still here writing & supporting others for years, too.
Love & Hugs,
DarlaThank you all for your greetings. Just knowing there are people out there going through what I’m going throught is warming to my heart and inpirational. I found this site so early because my angel daughters researched and found it. They are not only angels, but my little pit bull. They’ve seen this ordeal with me all the way since May20. Along with my dear husband. Yesterday was my secon chemo and I’m still kicking. Me the Lord and my doctors are going to get me through this and soon I’ll be writing 2-1/2 years later giving advice.
Elizabeth,
Welcome. Dad started chemo about a week ago. Only has minor fatigue. He is running around like normal.
xoxoxo
Elizabeth, you’re lucky to have found this site so early after your diagnosis and resection. It took me 2-1/2 years to find it. My procedure was very similar to yours so to a large degree, I know what you’ve been through and possibly what’s ahead for you. My surgeon warned me not spend time on the internet researching cc because most of what you read isn’t good. Other cancers have their support groups and websites, but our type is so rare, very few have heard of it. However, I’ve found this site extremely helpful by providing such positive support and information. I also told my surgeon about this site in hopes he’ll share with other patients so they, too, will know they’re not alone in this battle.
Please know you’re not alone on this journey. I look forward to reading more about your successful venture into the world of cc. God bless.
Dianne
Welcome Elizabeth, that is great news that you are doing so well post surgery… keep it up. The chemo affects everyone differently, so come back and share your story and challenges when you get there, there’s lots of support here. A lemon, for example, use to help my Dad, it countered the tastebud changes brought on by the chemo- so that he could better enjoy his food. The journey is a rollercoaster Elizabeth- no two ways about that!
Keep us posted, you’re in our thoughts.
Tess
Welcome Elizabeth.. I am sure it is all overwhelming now. Two and a half years on,I am still overwhelmed.
Chemo doesnt have to be debilitating, mine wavers between What I have cancer? to being in the hospital for dehydration.
Best of luck on your path.
Kris
Hello Elizabeth. I would like to follow Jolene in welcoming you to this site. You are right in that this cancer does not have an early detection mechanism. By reading previous postings you will notice that similar to your situation this disease appeared out of the blue. The good news for you is that the cancer has been found, your resection was successful, and appears to have been localized. The next step, if adjuvant chemotherapy is recommended, does not have to make you more fatigued or, may not even cause you not to feel well. As Jolene had mentioned, you will not be lacking support from the great members of this site as all of us understand your feelings and love to share with you. I am glad that you have found us.
Best of all wishes coming your way,
MarionDear Elizabeth, welcome to the best little club in the world that no one wishes to join. Yes, it is very scary but the more you read the more you will know how to fight this. Once the scary has passed the fight begins and takes over. You are perfectly normal in what you are feeling, its all still so new to you. The best RX is HOPE and ATTITUDE! You never know, everyone is different. Sounds like your doctor has a good grip on things and that’s a major part of the battle. Please feel free to come here to vent, ask or advise. These Board members are the most caring and loving people in the world!
Hi Elizabeth,
I am not a patient, though I cared for my dad through his illness. I just wanted to welcome you to the site. I have received the best support, insight and friendships through this board. I trust that you will find relief here, as well. Your emotions are what we all feel, whether patient or caregiver. We do depend on each other.
Praying for you, and wishing you peace on your journey.
Minnesota hugs to you,
JoleneHi my name is Elizabeth and I was dx with a Liver tumor 12x9x6.5cm on May 20, 2009. I had no real symtoms except I had a stomach virus. I went to the emergency room for the pain and the dr did a CT Scan with contrast and found the tumor. The next day, they did a biopsy and found it to be cancer. To make a long story short, I was a candidate to have a portion of my liver removed from a renoun oncology surgeon at the Univ of MD Medical Center. He removed all the turmor. It had not spread to the lymph nodes nor the organs near the liver. I’m doing great from the surgery – just a little fatigued. I meet with the Oncologist this Thurs to disgust the next step of Chemo. I guess that will take a lot out of me. This is all so new to me. I was a very healthy 63 yo. I had every yearly tests that are required every year – mamograms, gyn, physicals, blood work every three months (family physician required it) Colonoscopy every ten years and every test was perfect. Guess there’s no test for intrahepatic cholangiocarcinoma.
My emotions are up and down. One minute I’m positive I’m going to be the one to beat this and the next, I’m all weepy. Does anyone else feel this way?
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