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And now it is time for you to start healing. Everything happened so fast for you.
Stay with us. We are here for you, now and always.
Dear Judith,
I am very sorry for your loss. I’ hope in time the memories of the past few good months and the years beforehand will bring you comfort. And, I appreciate that even in this time of loss, you were caring enough to share information which might help others with such grace. Thank you.
Take care,
CatherineDear Judith,
I am so very sorry that John has passed. There is little I can say that will make this better but you and John are in my thoughts.
Dear Judith,
You and your family have my deepest sympathy. Try to take comfort in knowing that John is no longer suffering or in pain. Know that he will always be with you in your heart and memories.
Love & Hugs,
DarlaJudith, I’m so sorry for your loss. I guess I missed this thread entirely, as I spent most of February in the hospital. I hope that this forum will continue to give you support. The best advice I ever got (when my little brother passed away unexpectedly 3 years ago) was that grief is a process, not an event. It is true.
My best,
Lisa
Dear Judith, I am so very sorry but like we all know John is now home and at Peace. I will send you the signs to look for from John.
From John to Judith:
If I should be the first to go,
And leave you alone, my Dear,
Let not your heart be lonely,
Nor in your eyes a tear.
Grieve not for me, my Darling,
I’ll not be far away,
With petals of love and tenderness,
I’ll pave for you the way.
To join me in our sanctuary,
And ne’er again we’ll part.
Grieve not for me, my Darling,
I live within your heart.
Take joy again in living,
As you did in years gone by;
God knows what of he’s doing,
And not be questioned why.
Grieve not for me, my Darling,
My life with you on earth
Each moment filled with happiness,
And love so few be worth.
I’ll be waiting for you Sweetheart
Where skys are ever blue,
With eager heart and open arms
Patiently, for you.
Grieve not for me, my Darling,
May faith and my love keep.
Your soul filled with contentment
Eternally, I sleep.Hi again. I would like to let you know that my dear John passed away exactly 4 months after his diagnosis on 26th March. He had 3 good months then very quickly progressed after that. That last 5 days he was confined to bed with a pain relief pump. The hospice nurses were a wonderful help and support coming daily for those last 5 days. He passed very peacefully with all the family at his side.
Just if you are interested, the week before he died we had bloods tested and another CT scan just to see if his swollen abdomen had any drainable fluid. The CA19-9 tumour marker had risen to 1.8 million (it was 72,000 at the beginning). The liver was huge and covered with metastases and this caused the swelling and not any fluid or ascites.
My family and I really appreciated the 10 signs to end of life and it helped us to understand where we were on the journey. Thanks Lainey. I have also been interested in reading the messages on after-death visits.Thanks everyone for your support – to those fighting this disease My thoughts and prayers are with you.
JudithHi Judith,
I’m an ex-Queenslander and read this forum because my husband has had intrahepatic CC. He is currently clear after 2 resections, 2.5 years after it was first found.
I understand your husband’s decision, but just wondered if you or your husband’s doctors have spoken to the liver unit at PA in Brisbane? They would be the biggest in the state.
Best wishes,
Genevieve
Hi Nancy. Thank you for your reply. We are walking a similar path. I am thinking of you and wish you quality time with your husband. Although Johns blood tests continue to deteriorate and he is needing a higher dose of slow release oxycodone, he is comfortable and still able to do things for himself. I have taken leave from work to be with him. Keep in touch and take care.
JudithJudith, our stories are so similar. My husband was diagnosed in November of 2013. His biopsy confirmed intrahepatic CC. His tumor was large and nonresectable. He has some other health issues, so he decided not to pursue treatment. Hospice care has been a Godsend for us. He suffered an odd bout of pain in his chest that he said felt like an ice pick stabbing him. The hospice nurse was here in less than an hour and with meds he was fine. He has many good days and hours although he sleeps most of the time. He is 63 and we will be married 43 years next month. So far, no other pain and only a few bouts of dry heaves, also treated with meds. I hope you and your husband have amny more good days together. God Bless.
Hi Judith,
I would also like to welcome you to this site. Your husband has made a decision and his wishes must be honored. My daughter, Lauren, was offererd surgery, something we never dreamed would be possible. She went for it wholeheartedly and sadly passed due to complications. The point is that she did what she wanted to and although we are so sad without her, we are happy that she was given a choice and hope. My heart goes out to you both.
Love,
-PamHi Judith,
I just wanted to say hello and welcome. My sister made the decision not to have chemo – sometimes the right decisions are the hardest ones to make.
You will get so much support here for not just your husband but yourself and family too.
Hi,
Generic names are universal languages for medications; try to find the generic names first in your country and but them;
Generic medications are the “Trade name equivalent ” of that drug and should not make any difference in both drug efficacy and side effects. If the patent of the Trade name drug was not expired, get the name of the generic and bring it to a pharmacist to look it up for you in your country for the Trade name drug your country used. This is his responsibility as a Licensed pharmacist. If I were you, I will just give the Trade name used in the States to the pharmacist and let them find it out for you. if they don’t know or don’t have time, go to another pharmacy.God bless.
Hi Judith, welcome to the cc family Wanted to reach out and say hello and extend a warm welcome. Blessings and prayers to you and your family.
Hi there Judith.
So good to have another member of the family living in the southern hemisphere! I am in South Africa.
One thing I have learnt from this wonderful group of people, is that their advice is practical and is given from personal experience. That helps alot. So often people want to offer advice out of the kindness of their hearts, but do not know what they are talking about, because this cancer cannot be compared to others.
When this group suggests a medication, I check Google to see what it’s make-up is and then ask my local pharmacist if we have a similar product in SA. “Trade names” of medication is not always the same throughout the world.
All the best with your husband. My husband went through different tests between October 2013 and diagnosed with ICC on 29 December 2013.
Looking forward to getting to know you better as we share out life experience together.
Stella!
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