February 11, 2014 at 5:50 am #79511lisacraineParticipant
Welcome to this wonderful and supportive family. I am so sorry you are going through this. I will be praying for your family.
LisaFebruary 9, 2014 at 9:11 pm #79510marionsModerator
Judith…..know that we are with you, behind you and beside you all the way.
MarionFebruary 9, 2014 at 9:09 pm #79509dukenukemMember
This site is so wonderful. I was diagnosed in July 2013. Still doing chemo since the tumors are responding. I use this site to say the things I can’t tell my family and friends. And the response is overwhelming. And it is open 24/7 so there is no waiting. Frequently someone is on-line even in the middle of the night. It is so powerful knowing that those who are listening really understand you and what you are going through. Welcome to the family, Judith.February 9, 2014 at 9:07 pm #79508RandiParticipant
Welcome, Judith, but so sorry that you have reason to seek us out. Sounds like you and your hubby have thought this through and come to a decision that you are comfortable with. That is so important, to make a choice and know that it is right for you and your family.
I hope you make some more happy memories and take advantage of the help that you have.
Thinking of you and your family
-Randi-February 9, 2014 at 1:59 am #79507darlaParticipant
I too would like to welcome you to our CC family. This is the best group of people you will ever meet. Sorry you have a reason to be here, but glad that you found us. It sounds like you are both comfortable with the decisions you are making and that’s all that really matters. Know that we are all here to help and support you in any way that we can. Take care and let us know how you are doing.
Love & Hugs,
DarlaFebruary 9, 2014 at 1:37 am #79506kvollandParticipant
So sorry that you had to join our little family. It sounds like you have both thought this through well and come to a decision that you are comfortable with. I wish you the best through this journey.
I am very glad that you have hospice involved and remember that they are there to support you in anyway that you can. If you have problems or questions do not hesitate to call or ask. If your hospice is anything like ours in the States then they should be available 24/7 to assist.
Treasure every moment, take lots of pictures and don’t forget to laugh. This can be so depressing and can drag you down. As they say Live, Laugh and Love trying not to dwell on the disease.
KrisVFebruary 9, 2014 at 1:30 am #79505lainyParticipant
Dear Judith, welcome to our extraordinary family but I am so sorry to hear about your husband, John. Know that you have made the best decision, I have been there too. My husband fought a valiant battle for 5 years and when the Doc offered Palliative Chemo Teddy asked him how long that would give him and the ONC said you have about 5 months and the Chemo would give you 6. Teddy said, no thanks. We never looked back and we never regretted the decision he made. We called in Home Hospice right away as they really do make the patient more comfortable. I ordered a hospital bed as it is more comfortable and as time goes by the side rails help them get up and down. As he spent more time in bed I also bought a sheep skin sheet as it too is for comfort. Hospice brought the bed, a walker, a wheelchair and a commode which he never used. Toward the end I asked for Oxygen as it really helps relax the patient which helps with any pain. Bottom line is comfort so if you get to a point there is pain call the Hospice immediately and they will send out something. It is great that all your sons live nearby! Be strong and take care of yourself as well. We are all here for you so you are not alone in this Journey. Take care, be strong and you are now part oaf our family!February 9, 2014 at 12:48 am #9519judithMember
What a wonderful sense of family I have seen while reading posts on this site.
My husband John was diagnosed with CC on 26 Nov 2013 – just 10 weeks ago.
Up until that moment he was a seemingly healthy 61 yr old butcher who was a strong hard working man and everyone loved him.
We have faced many decision making moments in the last few weeks: first it was do we have a liver biopsy to confirm the source? We did and what we thought was pancreatic was actually CC.
We waited to enjoy Christmas with family before discussing chemo. Johns initial CA19.9 (tumour marker) was 72,000 then 4 weeks later it was 298,000. He decided chemo was not an option for him. Within another 3 weeks the marker level was 580,000. We are at peace with our decision not to fight this. His Oncologist agreed that it would only prolong his life by a matter of months and the side affects v quality of life was his decision.
Our three sons are adults although one is autistic and lives with us and all live nearby.
We are hoping that John can stay at home with the help of the community hospice service. This is an unknown journey and today it really brought home to me just what this is all about when he had an excruciating shoulder tip pain. It is now under control and I write this as I lay beside him sleeping. I know I will devour every comment on this site over the coming weeks as we walk this path together.
Thank you for being there.
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