no treatment, what happens now?

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Viewing 15 posts - 46 through 60 (of 85 total)
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  • #42804
    sistercorb
    Member

    Mr.J, thoughts and prayers goes out to you. Hope your Holidays were as good as mine. wish you were on the mountain too . I would come and see u., like i do my dad. God is in the valley ,as well as on the mountain. Keep your spirits high. love and prayers, Judy

    #42803
    sistercorb
    Member

    dear friends, we had a wonderful Christmas. Dad stayed with us for about 3 hours then headed back to his mountain. He is so yellow, he’s orange. Tired alot. My sisters are in from NC. just to be with him.but as usual , when he wants to leave , he just does . they’re kinda hurt, but like i tell them, dad is dad. We r so thankfu that our holiday was so great. Roni, i agree with Susan some days r so hard. when my dad was in NC i .worried so much . My sisters were so good to him. He just wasnt home. now i worry even more. He still likes being alone. sometimes he just sits , not saying anything. i wonder what he’s thinking. i take 1 day at a time. and pray, pray, pray. God grants surprises all the time. love and prayers for u and your parents.

    #42802
    slittle1127
    Member

    Dear Roni – You are experiencing very difficult days. On those days, hold on tight, count the blessings you do have. This is so hard to go through and being separated from your parents must be so hard on you. Do the best you can every day – that’s all you can do. Don’t apologize for venting – this is the place. It is overwhelming to think of potentially losing both your parents. I hold you close in prayer for your strength and your parents health. Blessings, Susan

    #42801
    ronidinkes
    Member

    judy,
    my mother is also happy to be alone, she has not been eating, and she wants to also die at home with her dog.

    she says she is very weak. i am in maryland, she is in new york. my aunt is doing all she can to help but she refuses to have ensure or boost!

    my father is also now in a pulmonary rehab, because his lower extremities have severe edema, and he has ascites in his abdomen. he is on lasix t.i.d but unless it is iv, they cannot clear the fluid and everyone is stumpted.

    i am just beside myself, taking clonopin to keep me level headed, but even that is not working.

    i just feel sad, out of sorts, and beside myself. both of my brother are in new york, but left for the holidays, one went to canada, and the other went to VA. so she is alone in new york, dad is alone in rehab. i ask why is everyone falling apart on me.

    i fear 2011. i do not want it to come, i am scared. i am reading a book called “the year of magical thinking” in an effort to prepare for what is coming. but i do not think i will be ready….sorry to rant on and on?

    happy holidays,
    roni
    ronidinkes@yahoo.com

    #42800
    mr-j
    Member

    sistercorb sorry to here that your dad has got sick again. I am kinda in the same situation myself and went 36 months before the cc traveled,now they say stage 4 and not much longerto go,my blood work and everything is fine I just have a problem digesting the food,its spread to my whole abdominal cavity and is puting presure on my colon,I am on the same roller coaster and am having another scan thurday to see if any of the bad cells have multiplied and then going to a differant hospital for 2nd opinion, I would like to see scans not just here reports from tests I live by myself and wish I was with your father even if it was the next mountain over.Thanks for honoring his request and I pray that he gets better again. Hope you have a enjoyable holidays with him.

    #42799
    sistercorb
    Member

    dear roni, boy do i no how u feel! its been a roller coaster ride for me 2. saw dad last night. he opened some gifts. he looks so tired. he still wants to live by hisself. my brothers and i are there most of the time. he wants no help. he says that he’ll go to the hospital when hes sick enough. hes sick now ! he wants to past at home with his dogs. he likes being alone alot. I just hope and pray we get thru Christmas and my sisters can get in. we’ve had bad, bad weather. makes traveling hard. hope your family have a merry Christmas and a happy New year. u can vent all u want. it really helps. love and prayers, judy

    #42798
    ronidinkes
    Member

    My mother also is not currently interested in chemo either. she is staying positive but is frightened of what the future holds.

    95% of the time she is upbeat, and holding her own, then 5% of the time she gets sad, and fears what the future holds.

    I feel so sad, and overwhelmed not being to “FIX” this entire nightmare.

    My father just spent 2 weeks in the hospital and was just sent to rehab prematurely, he has PAH and is suddenly critical ill, with severe edema in his lower extremities, and ascetis in his abdomen.

    Dad cannot take care of mom, Mom cannot take care of dad. They are in New York, and I live in Maryland with my husband and two children.

    Feeling overwhelmed at the fear of losing 2 parents in 2011. Can someone just “stop” the time for just a little while…..for me to catch my breathe.

    Thanks for listening, sorry to vent.

    happy holidays to everyone. wishing everyone a healthy new year.
    Roni

    #42797
    slittle1127
    Member

    Dear Sistercorb – These are difficult days and hard to see changes in our loved ones, but you are honoring his wishes and he can’t ask for more than that. Let’s pray that while things do not look good right now, we have seen that pendulum swing back and forth. Give him lots of hugs and let him know that he and your family are in our prayers. Blessings, Susan

    #42796
    jamie-d
    Member

    Sistercorb;
    You and your family are in my thoughts and prayers. Your Dad sounds like an amazing man. He’s doing it his way. I can totally understand his wanting to be at home on his mountain. I was in the hospital for a week recently and all I wanted to do was go home. I felt so much better when I got home. He is blessed to have such a loving daughter. I would give anything to have my daughter care about what is going on with me and to be there for me. Enjoy this time with him. I pray that you have a blessed Christmas with him. God Bless,
    Jamie

    #42795
    lainy
    Member

    Dear sistercorb, so sorry to hear all this. Dad certainly is doing this “his way”. I pray for him to make Christmas and to have a peaceful ending. My thoughts are with you all.

    #42794
    sistercorb
    Member

    update on dad. he is as yellow as a banana. his liver enz. r 12.5. still refuses the surgery for stents in PA. He says he’ll go to the hospital when he gets sick. He is still walking and eating. his bp is totally normal and pulse is 68. He weights 127. lost 3 lbs. His enzs. up from a 0.07 to 12.5 in a month. i know this is bad. please pray for him and our family. i feel death is knocking on our door . may u all have a merry Christmas and a happy new year.

    #42793
    slittle1127
    Member

    I wish I had a good answer for you, but I can tell you that my husband goes from being in bed every day for weeks and then has several good days – going out, shopping, so many things. I don’t understand it at all but I celebrate the good days and provide as much support as possible on the bad days. May your dad continue to do well back home in his mountains. Blessings, Susan

    #42792
    pam
    Member

    This is excellent news! My dad was a tough guy too. He survived an attempted surgery and chemo at stage iv and went on to have 6 months. He was in pretty good shape other than the cc. I think he would have lived into his 90s. I hope your dad has many more years with you all and I am glad he is back were he wants to be. The mountains sound beautiful. His surroundings might be the right medicine he needs! Have a great holiday with him!

    #42791
    sistercorb
    Member

    been a while since ive been on here dad is still going strong. he looks like hes turning a little yellow again. took him to the drs. his heart rate is slowly going down. blood presure normal other than this yellow tint and this pain meds he is doing fine the dr said he is the toughest man he nos thanks for all the prayers and i wish everyone a merry christmas may this season be a blessing like the last 3 months has for me

    #42790
    sistercorb
    Member

    update on dad he is walking, talking and has moved back to wva., on his mountain. he still is sick but he seems to be getting better. Is this possible? This man was on deaths door ,now he has surprised us all. Is this a normal part of cc? My sisters and I are at a loss. dont get me wrong ,im so thankful for this change and miracle. More time with him! We are just dumbfounded. IT COULD BE ALL THE PRAYERS EVERYONE SAID FOR HIM. and thank you all. I just came from his house. He seems better. Please someone tell us whats going on?

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