On the downside of the rollercoaster again

Discussion Board Forums General Discussion On the downside of the rollercoaster again

Viewing 9 posts - 1 through 9 (of 9 total)
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  • #51020
    marions
    Moderator

    Charlea….I agree with Lainy and Kathy. Your choice has proven to be the right one for you. If there is anything empowering when confronting a disease is just that; making personal and informed decisions. Kudos to you.
    All my best wishes,
    Marion

    #51019
    kathyb
    Member

    Charlea,

    I too am inoperable, and like you, I also feel very blessed with my now almost 2 years of quality life. It’s very nice to see that someone else feels as I do about surgery that couldn’t happen, etc. We are all so different and that is ok. Just really good to read your post.

    Kathy

    #51018
    lainy
    Spectator

    Charlea, are you kidding me???? You have as much courage as those taking Chemo. COURAGE is not measured by how you get there without considering the attitude and the strength you possess while on your way. I believe that everyone who has CC has a mountain of courage. Courage, faith, love is a winning combination. I commend you all and that goes for you too Miss Charlea!

    #51017
    charlea
    Spectator

    Hi All,
    I am in the midst of radiation again, just 10 days as before. Saw my radiation oncologist and told him I still feel as though I have no cancer. My arthritis pain is actually worse than any of this in my bones now and a “touch of Vicodin, a smidgin of Neurontin and a wee bit of Aleve has allowed me to pursue all of my activities. When I was first diagnosed my oncology surgeon refused to operate because of the extensive risk of the surgery and the fact that I had positive lymph nodes in my abdomen. I have thanked God daily for my doctor’s refusal as I know I would not have had the quality of life I have had in the nineteen months since diagnosis. I have felt mentally well, physically relatively well (except for pain which is bearable), and I can do all I want. Why I have been so blessed I will never know. I know I would never have had the courage to do what so many have done for a “cure” but, who knows, if I had been in their shoes I might have chosen to look for a “cure”.
    I pray for all of you in your monumental battles to live.
    Charlea

    #51016
    nancy246
    Spectator

    Charlea, I love how you don’t let this disease stop you from living and you get out and enjoy your activities! Are they radiating your left hip? So glad you are able to keep the pain at bay. Keep kicking butt, girl! Hugs. Nancy

    #51015
    marions
    Moderator

    Charlea……sorry to hear for the problems to be starting on the left side also. What a way to find yourself at the casino? Good luck with the upcoming treatment and may the winnings head your way all the way around.
    All my best wishes,
    Marion

    #51014
    lainy
    Spectator

    Hi Charlea, I am so sorry to hear of your “twinges”. Not fun but I do agree a Casino can be fun if you are a winner….yes, I think you are a winner in every sense of the word. I live 5 minutes from a Casino but ususally just go there for a dinner or lunch, the food is great. I hope you feel better very quickly.

    #51013
    charlea
    Spectator

    Forgot to mention….I started taking high dose Aleve Naproxen 550mg and have been able to cut my pain med to a third of what I have been taking. Perhaps others may benefit.

    #5316
    charlea
    Spectator

    It has been a while since I posted as I have been busy with a bone scan after a “twinge” of discomfort in my left hip (my R hip has already been scanned, operated, and radiated. It has only been a few months now so it seems rather rapid advancement of what the oncologist calls a significant cancer in the left SI joint. Still, no pain and only a little slowdown in my activities….Of course I will still have to stop at Angel of the Winds casino each of the ten days of treatment and continue my winnings! It is something else to think about outside of cancer.

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