Discussion Board Forums Good News / What’s Working One tumor is gone and another is just a sliver after 4 keytruda treatments

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  • #100225
    bglass
    Moderator

    Hi BillM,

    Wow!  What good news, thank you for posting your latest results.  We have had several patients with genomic mutations that respond to Keytruda on this board reporting similar positive stories  (for example, Matt Reidy and Momma Rose Wong, if you’d like to search for their stories).  These mutations are not common for our patients, but a few do have them.  Another encouragement that our patients have genomic testing.

    Please keep us posted and fingers crossed that your next scan result is even better.

    Regards, Mary

    #100221
    BillM
    Participant

    I was diagnosed with CC August of 2019. Been having issues and thought it was my gallbladder. Had one Y90 treatment and it reduced the tumor from a 4 inch diameter ball to a 3 inch long by 1 .5 inch diameter tumor. Since my doctor said I was going to die even if I had chemo, because it had spread into the lymph nodes, I decided I would not do chemo and accept my death. My doctor would not prescribe keytruda even though the tumor was DMMR/MSI-H. At the urging of a friend, I went to the Markie Cancer Center in Kentucky and the doctor said I was a prime candidate for Keytruda. For months, I had been having severe pain whenever I ate anything with fat in it. Basically, I had been living off of fruit, jello, and crackers. Campbell chicken noodle soup would cause me pain and I lost 40 pounds. Had no body fat to speak of. After the first Keytruda treatment, I had one last incident of pain 2 days later where I had to take 3 morphine pills in about an hour. After that, I haven’t had pain since. One of my tumors was supposed to just be a hemangioma and the other got the y90 treatment. I had a baseline CT scan in March. After 4 treatments and right before my 5th treatment, I had another CT scan this Monday. What a difference. One tumor was basically gone and there were just a couple of spots where the tumor had been. The other was just a sliver of its former self. He said they were both greater than 50% reduced in size but it looked more like greater than 75% from the pictures he showed me. One was basically gone according to the Dr. I am hoping at this rate, it will be gone by the next CT scan.

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