March 20, 2012 at 7:17 pm #58795gavinModerator
More great news! Great stuff and thanks for sharing it with us all! Love hearing these good news stories and I hope that they continue for you!
GavinMarch 20, 2012 at 2:19 am #58794pamelaParticipant
Happy to hear the great news. Keep up the great work.
Love, -PamMarch 19, 2012 at 9:53 pm #58793
I got the terrible face “rash”. It actually looked like the worse case of acne a teenage boy could have. My oncologist put me on Minocycline HCL 100 mg caps twice daily. I think it’s an antibiotic, but evidently not a really strong one because it doesn’t work for other infections I might get. This med has worked wonders for me in keeping my face clear and it doesn’t affect my stomach as other antibiotics do.
My view is that a clinical trial is a great hope. Right now I would rather be on a clinical trial than standard chemo for cc. Maybe I have to think this way since I’m on a clinical trial
God bless all of you,
KathyMarch 19, 2012 at 8:06 pm #58792candrewsParticipant
My Oncologist was hinting on Friday that at some point I might have to be in a clinical trial. He is running out of chemo options to treat me
CindyMarch 19, 2012 at 7:21 pm #58791tiff1496Member
Thanks for the info!!
Are you having a face rash due to Traceva? I do, and I can’t get it under control!March 19, 2012 at 5:00 pm #58790
GDC-0449 is also called vismodegib – brand name: Erivedge. It was just approved for “metastatic or recurrent locally advanced basal cell carcinoma in adults who cannot be treated with surgery or radiation.” That’s not what I have so it is not FDA approved for cc. The National Cancer Institute pays for this drug on my trial.
KathyMarch 19, 2012 at 3:02 pm #58789tiff1496Member
Good news!! What is the GDC-0449? I’m already on Erlotinib.March 18, 2012 at 2:57 pm #58788mariaParticipant
WOW this is wonderful!! Hope!!!!!March 11, 2012 at 10:49 pm #58787gavinModerator
What great news! Thanks so much for sharing and I hope that the good news continues to roll for you! Looking forward to hearing more good news from you!
GavinMarch 10, 2012 at 11:21 pm #58786marionsModerator
Thanks Kathy, nice to know which control group you are in. I wonder how the other group is fairing? Guess, we will have to wait for the report to come out.
MarionMarch 10, 2012 at 9:22 pm #58785
Yes, I receive Gemcitabine once a week for three weeks in a row. Then a week off. The oral drugs are taken daily.
KathyMarch 10, 2012 at 5:48 pm #58784marionsModerator
Kathy….great, great, news. Are you in the control group receiving Gemcitabine also?
MarionMarch 10, 2012 at 4:37 pm #58783lainyParticipant
Kathy, another MIRACLE HERO! This is such great news! What a way to Spring in to Spring so full of HOPE. Keep up the good work, you are much loved and we are looking for more good news!March 10, 2012 at 3:59 pm #6496
Great MRI report! Original tumor stable. Three new tumors on liver can’t be seen. Spot by stomach shrinking. Enlarged lymph node on spine shrinking. Tumor markers went down 60 some points.
This is a phase I clinical trial. There have been 55 people nation wide (at all three Mayo sites) on it and they have extended it to 55-65 more people. I have been on this trial longer than anyone (since July 11) and it’s working for me.
Thanks be to God!
(Original diagnosis July 09 – inoperable Klatskin tumor, cholangiocarcinoma, stage IV, prognosis 3-14 months)
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