Questions for Everyone with Klatskin Tumor
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Thanks for the reply Debbie. My mom is not a candidate for surgery, and even if they are able to get her to a stage of surgery, she is too weak to undergo it. So this is completely ruled out. I hopefully can find another treatment. She is also not a candidate for chemo, due to her anemia. We have a very unique situation, and still determining what to do. There is no one that I could find who has a pre-condition of severe anemia and CC.
Tania, my husband had a Klatskin tumor. It took many weeks to be diagnosed. He had multiple ercp’s with “brushings” that were negative, ct scans, a spyglass ERCP, all of which were inconclusive. Finally, an mrcp (using an mri) showed the tumor clearly. This was in early 2015 and he was diagnosed stage 3a.
No natural treatments. Initially, CA19-9 tumor marker level was 101. It got a bit higher as the tumor grew, but it never got crazy high, which is a unique typical aspect of the Klatskin type cc..
Initially, Mike was not deemed a candidate for surgery and he did 5 rounds of chemo (gem/cis). We obtained several second opinions, and one, from UCSF , indicated they could successfully resect the tumor. He had his surgery on 1/12/15, has recovered very well, and is NED at nearly two years post op. If you are interested in more details, click on my user name and you can find a full summary under “all posts”.
This is a tough, long journey and I wish you all the best.
Debbie
Tania,
It was both for my mother. She had a couple of ERCPs before it was definitive. The first one showed that it wasn’t cancer but GI doctor told me to ignore the results because he knew it was a Klatskin Tumor. 2 weeks later he was proven correct.
She was originally told it was not surgically operable by a jackass doctor in Denver, but I found a surgeon in LA about 5 months later that said he could remove it. Ultimately, too much time had passed.
I would tell you that 2 different surgeon can look at the same information and have two completely interpretations. So if one says they can’t get it, I would just talk to other surgeons.
Hope that helps
Joe
Hello,
If anyone has Klatskin Tumor, it would be greatly appreciated if you can give responses to following questions.1. How were you diagnosed? For instance, were there a few biopsies or the doctor knew before the biopsy, and was there great length to determine this was diagnosis.
2. How long ago was it diagnosed and what is the stage?
3. What natural treatments are you using and does it help?
4. What are your CEA levels or the tumor marker?
5. Were you not a candidate for surgery or chemo?Thank you so much in my quest to understand this condition.
Continue with your strength and positive outlook. I know this is tough.
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