Rare Cancers Patient Empowerment Day UK

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  • April 19, 2013 at 5:03 pm #70907
    marions
    Moderator

    Thank you, Gavin – great news. We can then await Helen’s report on her website and you, dear Gavin, to provide the link for us.
    Thanks for all you do.
    Hugs,
    Marion

    April 19, 2013 at 11:30 am #70906
    gavin
    Moderator

    Marion,

    Got in touch with Helen last night, and she says hi to you as well! She will be attending this patients day and will no doubt post her thoughts etc about it all on her website and FB page afterwards. She also said that AMMF work with this organisation when it comes to all matters relating to CC as well. Mentioned that I think they will be doing more of these days throughout the UK this year, and if they do one up here in Scotland then I will see if I can attend it.

    Hugs,

    Gavin

    April 18, 2013 at 7:25 pm #70905
    gavin
    Moderator

    Will do Marion!

    April 18, 2013 at 7:24 pm #70904
    marions
    Moderator

    Thanks, dear Gaving. Please say “hi” to Helen.
    Hugs,
    Marion

    April 18, 2013 at 7:16 pm #70903
    gavin
    Moderator

    I’ll be getting in touch with Helen tonight Marion as I need to speak with her about something anyway, so I’ll mention the conference and see if she is attending it.

    Hugs,

    Gavin

    April 18, 2013 at 2:40 am #70902
    marions
    Moderator

    We could check with Helen (AAMF) to see whether she is participating or if someone she knows can report back to us.
    Hugs,
    Marion

    April 17, 2013 at 7:12 pm #70901
    gavin
    Moderator

    Too for for me as well right now with things the way they are with my mum at the moment. Think as well from reading it that it is focused mainly on patients attending, it says that patients get free entry. Perhaps carers, familes etc would have to pay.

    April 17, 2013 at 6:46 pm #70900
    clarem
    Spectator

    I’m not going Marion. I hadn’t even considered going partly because my sister has died but also it is in London which is just too far for me to go.

    Any UK members on the board hoping to go?

    April 16, 2013 at 10:09 pm #70899
    marions
    Moderator

    Clare……thanks so much. Information such as the one you provided is so very helpful to others. Will you be able to attend this conference?
    Hugs,
    Marion

    April 16, 2013 at 7:55 pm #70898
    gavin
    Moderator

    Thanks for that Clare. Should be very informative and handy for new patients, families, carers etc recently diagnosed in the UK. No problems with posting it here! Thanks again.

    Hugs,

    Gavin

    April 16, 2013 at 7:08 pm #8236
    clarem
    Spectator

    I found out about this via AMMF, the UK CC charity. Apologies if I have posted in the wrong forum.

    The Rarer Cancers Foundation is holding a patient day for cancer patients, carers and their families in order that you can gain a better understanding of the care and support you should expect after being diagnosed with a rare or less common cancer.

    The conference (3rd June) will explore many of the options available to patients such as referrals to expert second opinions, specialist cancer centres, clinical trials, radiotherapy, access to drugs and much more besides. For more details and a registration form, click the link:

    http://www.rarercancers.org.uk/forum/viewtopic.php?f=2&t=295

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