Recovery from resection
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Hi Lolitalaw,
I saw in your message you wish you had opportunities to talk with others also dealing with a cholangiocarcinoma diagnosis experienced by a loved one.
Please be aware that the Cholangiocarcinoma Foundation offers monthly support group meetings for caretakers (and patients). The schedule can be found on the Foundation website.
Also, you may be interested in receiving support through the Foundation’s mentorship program. I will place the link below.
I hope your mom is feeling good. I know it is daunting to have a big surgery scheduled. Finding distractions of any sort can be helpful.
Regards, Mary
My mom’s surgery is scheduled for October 4th. She has another echo this Friday. Her EF was at 35-40% after being septic but it rebounded to 45%. Assuming it is stable (risky but stable,) she will be having a right lobe hepatectomy. So far, CT does not show metastasis.
Right now she is anxious, scared, tired and very worried about my father who has tirelessly taken care of her these past 5 months. He was diagnosed with 4th stage prostate cancer the year before. He is in “remission” so to speak.
Thank you for asking. I need to talk. This is all too much.
Lolitalaw,
Has your mom had the resection surgery? How did it go and what is her current state? She is in my prayers.
Hi Lolitalaw,
Welcome to our community. It sounds like your mom has been through quite an ordeal in recent months. I hope the way forward is better for her.
There are multiple studies of whether elderly cholangiocarcinoma patients can tolerate resection surgery. You can find them by internet searching the three words “resection,” “elderly” and “cholangiocarcinoma.” The general conclusion for most of them is that the surgery can be well tolerated in general by elderly patients.
That said, some surgeries are more complicated than others, and the patient’s health status going into surgery will be carefully assessed before a surgery recommendation is made. Your mom’s surgeon can give an assessment of any risks involved with her surgery that she can then consider in deciding whether to go forward.
If you search “resection” on the discussion board, you will find patient stories about what recovery from resection surgery is like.
Please send any further questions you have our way.
Take care, regards, Mary
My mom became ill April 8th and didn’t received a confirmed diagnosis until June 24th. She has been hospitalized 5 times including 3 for sepsis. She has had 6 ERCP’s. We are finally at the point where surgery is an option. The doctor will remove the right lobe and I know the surgery will take anywhere from 6-10 hours. I would like to know, realistically, what recovery from this surgery is like. My mom is 74 and 90 lbs. Before getting sick, she would walk 20,000 steps a days so she has fight. Will she survive the surgery? I don’t know because she has also been in heart failure brought on by septic shock. I need to know if the recovery is something she can handle. Thank you.
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