CholangioConnect creates personalized connections that enable one-on-one support among cholangiocarcinoma fighters, survivors and caregivers.
This peer-to-peer connection platform helps anyone touched by cholangiocarcinoma, at any stage in their journey, find a mentor to ask questions and get support from someone who has personal experience with the disease. All services are provided in English only.
Greetings from Istanbul, Turkey.
I am 45 years old and work as an attorney of law, the profession that I inherited from my beloved father who passed away from cholangiocarcinoma on Jan. 8, 2018.
My dad had a Klatskin Tumor, and he was diagnosed in August 2017, within a week after being hospitalized due to unexplained fever. He was taken into Whipple surgery but it was understood he had multiple micro-metastases in the liver so nothing could be done.
This was a very rare cancer and little was known so I started looking up on the internet to find out if there was anything I could do to both lengthen his life and help myself bear the situation. That's when I found the Cholangiocarcinoma Foundation (CCF).
I filled out the form and I was responded to immediately by dearest Tom Leitzke. I thought I was pretty lucky because he was a wonderful person. He was very understanding, always by my side, giving advice and positive vibrations, not only for a year until I lost my father, but also afterward while I have been grieving. He even made a connection between me and Svetlana Zheleva from Sofia - Bulgaria. She was also taking care of her mother who suffered from the same cancer.
I keep in touch, as much as possible both with Tom and Svetlana. In this journey, Tom has been an elder brother to me. I really do not know how I would survive being an only child through a year of illness and six months of hospitalization.
I am grateful to CCF for this opportunity and forever in the debt to Tom for being my mentor.
ASLI BESE OZDEMIR