Viewing 8 posts - 16 through 23 (of 23 total)
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  • #51326
    jim-wilde
    Member

    Susie, I had a resection 4/09, and am still clean. I had only Gemzar, based onc’s strong recommendation. Chemo was a six month deal started about six weeks after hospital discharge.

    Good luck.

    #51325
    betsy
    Participant

    Hi Wallsm1
    I too had the same results from my resection in Jan. 2009. I am still cancer-free. The oncologist I saw told the exact same thing – 50% the first year and the percentages go down from there. The first year was difficult for me. The doctors kept checking for a recurrence and I was holding my breath. Its been 2-1/2 years and I am still here. I did not receive chemo.

    Betsy

    #51324
    wallsm1
    Participant

    Good for you, Sue!

    I am starting adjuvant chemo next week with Gemzar and Cisplatin.

    Take care!

    Susie

    #51323
    marions
    Moderator

    Hi Sue….thanks for popping in on us.
    Hugs
    Marion

    #51322
    scragots
    Member

    Hello,

    Your diagnosis sounds like mine, and I too had a resection with clean margins (and no chemo). My doc also gave me 50/50 odds and I am now at 4 years, 5 months with no recurrence!! So you see, it truly is possible to have no recurrence. I know it can come back at any time, but my doc said the more years you go without one, the less likely it is to recur. So, I am moving full steam ahead with my life. It was very hard in the beginning, but you have a great start. Good luck to you and please stay on this site. People here are an amazing source of help.

    hugs.
    Sue

    #51321
    marions
    Moderator

    Hello wallsm’s and welcome to our site. Congratulations. Given your positive outcome following the resection, your age, and the increasing research focusing on this disease you are in optimal postition to have conquered this cancer. Enjoy life and stay vigilant in regards to recommended follow-up care. Life is good, have fun, focus on all the wonderful happenings yet to come your way.
    All my best wishes,
    Marion

    #51320
    nancy246
    Participant

    Hi, I searched “recurrence rates of cholangiocarcinoma after resection” and read a few articles. Her odds of 50/50 were pretty consistent with what I read. Are you getting chemo? The “jury is out” on getting chemo after resection but I would look into it and make your own decision. My husband is advanced stage 4 so was not operable. We chose palliative chemo (finished May 18th) and he gets naturopathic support. He has had no growth since February. I highly recommend naturopathic support but realize it’s not for everyone. Will tell you more about it if you are interested. Keep positive, your cups half full! Best wishes. Nancy

    #5363
    wallsm1
    Participant

    Hello. I am 31 and had a liver resection for intrahepatic cc about 2 months ago. I had negative lymph nodes and clean margins. When I asked about my prognosis, my oncologist gave me 50/50 odds that the tumor would recur and if it did it would probably recur in my liver. I think the odds she gave me were extremely overly optimistic. Does anyone have any information on recurrence rates?

Viewing 8 posts - 16 through 23 (of 23 total)
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