Discussion Board Forums Introductions! Road traveled by others….

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  • #54139
    marions
    Moderator

    Hi SHardy, Grove’s daughter. Thanks for joining and confirming what is so apparent in his postings – your Dad is awesome.
    All my best wishes,
    Marion

    #54138
    shardy
    Member

    As Grover’s daughter – he has always and will continue to be an inspiration to me! His sense of humor has always been on (don’t get the two of us together and on a role) and that is one of his many traits that I am most proud to think that I have inherited.

    I love you dad – I won’t let go!

    xoxo

    #54137
    lainy
    Participant

    Life as usual, that’s Grover. Love your posts. Have fun with the Grandchildren, we all know they are the best RX in life!

    #54136
    grover
    Member

    Thank you so much for the welcome, but youse guys have set me up with all those comments on humor and attitude. I have always tried to raise my children with a positive attitude and I have told them and my wife that this is just a roadblock on the road of life. Move it, go around it, climb over it, blow it up…………. but don’t let it stop you from going down that road.

    Dang, I did it again, with that first paragraph.

    Thanks again. My chemo drink has been pretty easy all things considered from reading other posts. I have had minimal side effects. 1 chemo was cancelled due to low platelets ( it was the 3rd one ). The Dr made adjustments and all blood work has been right on since then. I have had no nausea, no hair loss. Some itching now under control, constipation now under control. Sometimes I just want to sleep, appetite so, so, but my weight is not changing to speak of. I still do about anything I want, including balancing on one leg on a fallen tree about 7 ft above a raging creek ( maybe not raging ) but it was gurgling in Cades Cove around Gatlinburg. That was just to bug my daughter when she saw the photo.

    This week end we are going with the daughter and grand kids to see the Sand Hill cranes as they migrate south for the winter, this takes place in Northern Indiana.

    More later on what helps me through this disease.

    Prayers to all, God Bless, Grover

    #54135
    gavin
    Moderator

    Hi Grover,

    Welcome to the site. Sorry that you had to find us all and I am sorry also to hear about your diagnosis. But I am glad that you have joined us all here as you have come to the right place for support and help and you will get a ton of both of them here. And no apologies are ever needed for rambling! You come here and ramble as much as you want to, and if you have questions then ask away and we will do what we can to help in answering them.

    You sound like a very positive person and a positive attitude will certainly help you here, and I love your sense of humour too! Looking forward to hearing more from you and please keep us updated on how things are going for you.

    Best wishes,

    Gavin

    #54134
    marions
    Moderator

    Grover….a warm welcome from me also. I am glad that you have found the club no one wants to belong to but, out of necessity is glad to have found. Stay positive and don

    #54133
    tiapatty
    Member

    Grover,

    Welcome, you are among an audience that appreciates humor, you might call us connoisseurs. Humor is the best kind of medicine–it’s free and has no side effects. Keep us updated.

    Patty

    #54132
    peggyp
    Member

    Hi Grover,

    Welcome to the CC family. Keep that positive attitude and it will help you in your fight. My husband was diagnosed over 3 years ago and he is still hanging in there. He just started on a different chemo today; he had been on gemzar/cisplatin/avastin but it was affecting his kidney (one was removed when he had surgery in ’08) so his oncologist said he had to come off it. Hopefully, the Xeloda will be more kind to him. Many have referred to this journey as a rollercoaster ride, and you’re right when you say it’s the worst reality TV show. So hang in there and keep posting. PeggyP

    #54131
    wallsm1
    Participant

    Best of luck, Grover! And I agree, we are all on the worst reality TV show ever created.
    Take Care!
    Susie

    #54130
    pamela
    Participant

    Dear Grover,
    I am sorry to hear of your diagnosis of cc. You seem to have a positive attitude and a great sense of humor. We sure can use a good laugh from time to time. I just wanted to wish you good luck with your treatments and to let you know you are not alone in this battle.

    -Pam

    #54129
    mlepp0416
    Participant

    Grover: Welcome! My husband Tom’s Alk Phosphate was at about 1500 when we first started his journey with CC. His cancer was in the left lobe of the liver and they were able to do a left resection but they also took part of the right lobe of the liver along with the gall bladder. About 70% is now gone. His A.P. was holding pretty steady at about 1258 for many months. Then it dropped to 958 and just recently went to about 659. The nurse at the oncolocy center was so concerned with that 659 for A.P. that she was wondering if he could undergo chemo. I asked what it was, and when she showed me the printout I started laughing (so sorry, but it was funny)….I let her know what his A.P. has been and that I was so happy to see it at 659 cause that’s the lowest it’s been in 3 years! And in that time he had a resection, reoccurance of a tumor, turned jaundiced, had an external bile drain inserted, underwent 28 rounds of radiation, 6 cycles of oral chemo, had a port installed, gets a tube exchange every 4 weeks and underwent about 4 rounds of IV chemo….and after all that because he now has a new tumor that is growing and his doc wants him on 5-FU chemo, the nurse is questioning if chemo would be safe for him cause his A.P. is at 659? He did receive the chemo! Sometimes people just put too much emphasis on the ‘numbers’!

    Go with God and KEEP KICKIN’ THAT cancer. I hope both you and Tom live to be 110. He is going to be 65 this coming Feb. So he’s got a lot more years to get to that age. He has outlived the 6 months that they gave him, today we celebrate 2 years since we heard those words. Stay POSITIVE.

    Hugs,
    Margaret

    #54128
    candrews
    Participant

    @ Cathy: I just found out 2 weeks ago that I was eligible for SSD. I had no that at age 55 I would qualify. I didn’t go looking for it, my husband’s medical benefits trust recommended that I pursue it. So, last week I got the ball rolling.
    @ Lainy: I am walking on cloud 9 just because Grover is on here! Can’t wait for him to get back on and read his replies!

    #54127
    lainy
    Participant

    Grover, welcome to our wonderful family of the most courageous and caring people in all the world. When I read your post it brought a tear to my eye. Not a tear of pity but a tear of awesomeness for your wonderful attitude. That is the way to go, it will get you much further in every way. Sounds like you have a plan and if I may add a side note, I would hope for you and Cindy to meet up. You have no idea what it does for one of us to meet someone from this Board. It is like getting a whole infusion of wellness. There is no weird humor here it is the best humor and greatly needed. I am so glad to welcome a new comedian to the site. I can’t wait for your next post! Be strong and have attitude!

    #54126
    jathy1125
    Participant

    Grover Welcome and sorry you had to find us. I am a CC survivor, there is HOPE. I have been cancer free for 2 years. My CC was inoperable, but I qualified for a transplant.
    I have heard your doctors mentioned on here, so you are in good hands. This cancer is so rare, that finding a CC center or doctor is important. My miracle worker was at Barnes-Jewish Hospital, St. Louis MO. with Dr. William Chapman.
    I would suggest you look into SSD, because CC qualifies (that is one positive of CC). It takes 5 months from day of diagnose for first check. Ypu need to save all your physical strength to fight this!!
    Lots of prayers-Cathy

    #54125
    candrews
    Participant

    Oh my gosh, Grover! I live 27 miles SW of Indy and my oncologist is Dr. Helft and my surgeon is Dr. House! I started seeing Dr. Helft in July, and I was fortunate enough to have received the liver infusion pump from Dr. House on August 8th. I have my appointment with Dr. Helft this Friday and will get my FUDR. Keep fighting, and hold out for the liver infusion pump! I feel blessed that I was able to get it! And, don’t worry about rambling, it was good to meet a fellow Hoosier on here!

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