March 13, 2009 at 9:25 pm #26746simpstwMember
FAITH, HOPE, POSITIVE ATTITUDE and A SECOND THIRD or even FOURTH OPINION…..
If I had believed my first Dr. and thier prognosis, (and it turned out to be correct) I would have been dead now for about three months….
I refused to believe what they told me and sought out and found another facility and they gave me hope, believed in ME and thier treatments….. well I just recieved the results today, (after six treatments) of my PET, CT scans and blood work…. ALL are NORMAL and ALL show no evidence of liesions and are “unremarkable”… all previous liesions are no longer seen… bile ducts show no sign of dialation… Chemo has been discontinued (after this one #7 for good measure) and I am now on 3 month check ups….. not bad for having supposed to be dead for three months now….
Never take your first or even second opinion search out the “specialists” those who offer Hope to begin with, and do not strip you of hope from the get go..
God bless you,
TerryMarch 13, 2009 at 12:45 am #26745
Someone on this board had been asked: What is your life expectancy with this cancer?” Her answer (question) “What is yours?”March 12, 2009 at 10:36 pm #26744dragonflyandbutterflyMember
Like a commercial I seen the patient went to the doctors to only find out they had cancer. The doctor gave them a limited time frame. They went to another doctor and that doctor said to them. “I did not see a time frame for your life stamped on your foot”
Please try to see it that way. Just because someone tells you have so many months to live, that is how it is? Would you jump off a cliff because they said it was the only way? Heck NO!!!
When my mom was sick, I would be the one to keep her going, I refused to let her get down. She was laughing and walking and trying to dance the night before she passed. Was I selfish to make her not give up? maybe but I am willing to be selfish for you.
Keep in touch as much as you can, maybe I can try to lift your spirits.
hugs from dragonflyandbutterflyMarch 12, 2009 at 6:02 pm #26743
Suzanne…I have asked other physicians but, none had related lumps to this cancer. This of course, does not mean that it possibly be linked to CC. Lowered resistancy due to the cancer has been mentioned, which then could manifest itself by the appearance of other diseases. Please, let us know what you physicians think about this unusual occourence.
Thanks a bunch,
MarionMarch 12, 2009 at 3:16 pm #26742suzannegmMember
I too have lumps on my head and have had several removed in the past. I was told they were clogged oil glands. I currently have 4 or 5, but I’ve never mentioned them to any of the doctors treating me for this horrible cancer. I guess I should mention it.
When did you first notice the lumps? And do they start small, then get bigger over time?March 12, 2009 at 1:34 pm #26741carol58Participant
Hey Tom, keep us posted on how your next appointment goes. Staying inside does tend to make us feel isolated. I hope you can get out and about soon. Good reports and good wishes for you!
CarolMarch 12, 2009 at 10:36 am #26740micsylParticipant
Thinking of you across the miles in South Africa.
love and prayers
MichelleMarch 12, 2009 at 9:42 am #26739magicParticipant
Hi Tom thinking of you and wishing you my best
kind regards JanetMarch 11, 2009 at 4:52 pm #26738cherbourgParticipant
Stay strong and know that you are in my thoughts and prayers.
Hugs to you and yours…
PamMarch 11, 2009 at 4:27 pm #26737
Tom….Our JeffG has written numerous times in re: to “mets to bones”. You might, if you feel inclined to do so, peruse some of his threads. I am wishing and hoping for a treatment protocol to be the result of tomorrow’s visit with the Royal National Hospital.
Thinking of you and sending tons of good wishes your way,
MarionMarch 11, 2009 at 4:01 pm #26736sambamanMember
Hi again all, thought I would give you a bit of an update. I started my next next cycle of chemo yesterday with Gemzar and Cisplatin.
But with regards my hip I met with an orthopaedist on Monday to decide upon a course of action, had an x-ray and it turns out my left hip is of most concern as the socket of the joint is affected so with my prognosis they are worried about recovery times. I have been referred to the Royal National Orthopaedic Hospital (which is the leading bone tumour unit in the UK) for a more specialised opinion. I have an appointment tomorrow morning so hopefully I will have a plan of action tomorrow! It is causing me a lot of hassle as it is affecting my mobility which is the most important thing to me as it means I cannot get out and about as much as I want to, being forced to stay in makes me feel more like a prisoner to this disease and brings me down.
TomMarch 6, 2009 at 2:38 pm #26735lainyParticipant
Hi Tom and good day to you too. All sound good. It does begin to feel like one is running a business not an illness, yes? Hoping for all good reports for you!March 6, 2009 at 2:30 pm #26734sambamanMember
Afternoon guys and girls,
Next week is shaping up to be a busy one! I have an appointment to see the orthopedist on Monday to discuss my hip which is getting better day by day but still causing me problems. Then I have chemotherapy on Tuesday and have received a letter today containing my appointment for the Royal Marsden Hospital for Friday to see what they can offer.j
Am also seeing my oncologist tomorrow morning, I am going to ask for a bit more information as when I saw her last week I didn’t really ask any questions after the I was given my prognosis, which was understandable, as I wasn’t thinking straight at the time. But now my head is feeling a bit clearer I can hopefully begin to understand things a bit more.
This week I have generally been feeling ok, helped by the fact it has been my week off chemo, just had the problems with my hip. Will be interesting to see if my CA-19 levels have increased (I was told they were at 80 last week). I am expecting them to have gone up but we shall see. The lumps on my head are still evident and I need some more info on those too.
Wishing everyone a great weekend!
TomMarch 4, 2009 at 3:02 am #26733magicParticipant
Hi yes accor ding to the oncologist they were related to the cancer but not a usual occurence
JanetMarch 4, 2009 at 2:47 am #26732
majic…what kind of lumps were those? Was it suspected to be related to the cancer?
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