Seeking info from those who choose NO Treatment
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sitaram wrote:My Father has been diag with intrahepatic Colangiocarcinoma of size 6cm by 6cm , poorly differentiated in seg iv B extending into the porta location Y . there is mild dilation of intrahepatic bilary radicles. The dr has suggested therasphere. kindly guide. what is the life span without treatment ? & with treatment ? Can stent be inserted ?
Side effects of theraspere . Is it a viable treatment ?
my email naman_nirmal@rediffmail.comHi, and welcome to the CC site, I’m sure someone will be along to offer their advice, I would re post in the Introduction site as you may get more replies.
Where do you live?
As for time span CC seems to effect everyone different. My Dad survived 12 months without any treatment apart from stents. My Dad had extrahepatic CC which is outside the liver, so different to your Dad.
Have you got second or even third opinions? CC is rare and sometime the patients may need to push for better advice and experience.
Best wishes
Andrea
My Father has been diag with intrahepatic Colangiocarcinoma of size 6cm by 6cm , poorly differentiated in seg iv B extending into the porta location Y . there is mild dilation of intrahepatic bilary radicles. The dr has suggested therasphere. kindly guide. what is the life span without treatment ? & with treatment ? Can stent be inserted ?
Side effects of theraspere . Is it a viable treatment ?
my email naman_nirmal@rediffmail.comDear Isellure,
Sorry to hear that your mum is going through such a tough time right now and I agree with what has been said to you by the others. Both the pain and nausea issues can be controlled with medications and my dad had issues with both. He started off with one type of pain meds then that was upped then changed to a different type then upped again. The same happened with his nausea, he started on one type of med, then that was changed and changed again until they found something that worked better for him. He was on a variety of types and combinations of meds for his nausea and all the time here he was in close contact with his GP. Trial and error here as Andie said to you.
You say that your MIL is in pain but does not like people to know and my dad was a bit like this as well. I think that perhaps sometimes our loved ones do not want us to know how they are feeling. When your MIL goes to the doctors, do you think that she is being completely open about her pain and nausea issues? Maybe a different type of pain med could be tried?
I hope that you can get some help for your MIL here as I am sure that if her pain and nausea were under control then she would be feeling a lot better. When my dad had his troubles with these he would feel so much better and comfortable when the meds were working for him. Please keep us updated on how your MIL is doing.
My best wishes to you and your mother in law,
Gavin
Dear Isellure,
My Dads CC was inoperable, also near the Y, and he had no treatment apart from 3 metal stents and in the end an external drain. Chemo wasn’t an option because of his high bilirubin level even with the stent. Have they offered your MIL any treatment, ie chemo?
Luckily my Dad never experienced any pain, only heartburn in the last few weeks of his life. The doctors told us 2-3 months when he was diagnosed and he lived 12months. BUT everyone is different and no one has an expiry date stamped on them.
I do agree though that the pain should be able to be controlled, it will probably be trial and error, what works for one may not work for another. I would call your MIL doctor on her behalf asap.
Best wishes
Andrea
Dear Isellure. Most definitily agree with the above comments. If Cancer pain is not under control it only gets worse and is then harder to get under control. Her doctor does need to know all that is happening with her. Has he talked to you yet about Hospice? Hospice is not the end it is the beginning to a more comfortable living. Home Hospice is wonderful and you can call on them even a year in advance. After the doctor calls them, they come out immediatly and do an evaluation. The patient is usually reluctant but once the Nurses come they really do love them. It will also ease things up for all of you so that you can perhaps spend this time in a more enjoyable way, making happier memories.
Isellure…Definitely, do not allow your MIL to experience pain. It can be controlled. At times different medications need to be substituted but, it can be done. Additionally, the nausea can be related to the cancer and again, medication can be prescribed. Her physician would be able to answer that question. Patients in pain accompanied by nausea are not always in the position of making decisions and choices. This appears to be the time for you to step in and help out. Please, keep us posted.
All my best wishes,
MarionIsellure – You really said it all…one case is never like the other. All I can tell you is that your MIL should NEVER and I mean NEVER have any pain. Pain can be managed and her doctor needs to know that she is suffering. This is unacceptable. The one thing I have always been thankful for is the fact that my son’s doctors would not allow him to have pain. They would change and increase his medications as needed. I am not sure how the doctors determine “slow growing.” No one ever gave my son a timeline. I know Mayo has a good reputation so I hope she will be given something to help with the pain. If she reacts to the pain meds, she needs to tell the doctor….there are many different options to treat this problem. Good luck and keep us posted – Nancy
My MIL was diagnosed in August, only symptom was jaundice. Since then has had plastic stents replaced (now on her 3rd) and now on morphine pills every twelve hours, lose dose. Just had the first MRI since diagnosis and dr says, very little change but possibly grown some. She is very weak and frail, doesn’t get out of the bed to much and when she does she is exhausted in just a few minutes. Dr told her this cancer wouldn’t spread and was slow growing….is this really true? I read on here about so many other that do have spots elsewhere. Slow Growing….what is that..what does it mean? She doesnt want anyone to know how she feels really. She’s been in pain but doesnt say a word and then goes to the dr and get’s pain pills and now taking them twice a day. I’m not sure if its the pills making her sick at her stomach or if this is the cancer, or if it’s a combination. If this cancer isn’t growing why is she in any pain…and absolutely no energy. A trip to the kitchen and then to the sofa is tough for her and I am so sad, she was so full of life. So I am asking those who have opt’d for no treatment to let me know what they have experienced–and I see no one case is like the next one, but a little insight would do us good. She is being treated at Mayo in Jacksonville, FL, she’s 67, given 3-6 months of live and we are now beyond the 6 month mark. Her cancer is near the “y”.
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