small town cc link??
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I have to agree with everyone else. There doesn’t seem to be anything about this disease that can be really explained. Shortly after Jim passed away I was talking to a friend, explaining what he had and how rare it was and she said her younger brother who passed away several years earlier also had CC.
Then a couple walks into the shop and asked for Jim. When I explained he had passed away from a rare form of cancer, they asked what it was and it turns out the husband who was in his 70’s also was diagnoised with CC but was going to be having surgery. They were very hopeful as they said the doctor felt he could be cured. Needless to say that after going through what we had I found this very hard to believe, but didn’t tell them that. Just wished them the best. I never saw them or heard from them after that, so I have no idea if his surgery was successful or what the out come was. I often wonder though.
Life has a lot of seemingly inexplicable mysteries. A girl that grew up across the street from us moved to PA and married. Her husband died of cc within months of my own cc diagnosis. She was aware of how rare cc is (approx. 2000 new cases per year in the US) and she was just floored when she learned of my diagnosis. There just isn’t any way to explain, any more than two slot machines across the aisle from one another having jackpot payouts within 15 minutes of each other, with very high odds against either having the big payout. So far, I’ve yet to see any carefully written treatise detailing the specific causal factors associated with cc, but have seen lots of speculation.
We have to remember that these are averaged numbers based on the entire US population. There may be an occurrence of Cholangiocarcinoma of 2 people within a city of 26 000 and there may only be 5 people in a city with a million inhabitants.
What I do believe strongly though is that the 1 to 2 persons per 100 000 is not correct. In fact, Percy pointed out two studies in where the estimation is more like 5 people per 100 000. There is a good likelihood for this cancer to be misdiagnosed and I think that statistics will prove that in the years to come.
Hugs and all my best wishes,
MarionTo Devastated and Margaret, some tips that seemed to help me a little.
Keep the TV or radio on softly so there is sound in the house.
Find little projects in the house to keep yourself busy.
Give a tweak of your husband’s cologne on his pillow.
Sleep in his T shirts or sweats. I am still wearing Teddy’s socks around the house.
Start a log on your computer and write in your feelings. I even have a log of Teddy ‘sightings’ and in 1 year have about 44 dated notes of when I think he is around me. I.E. through songs, TV going louder or softer, lights going out. When I feel lonely I read the log and know he is still around me. What ever works for you, use it! I am so with the both of yoU!Dear Joann,
The numbers you quoted are on an annual basis. 1 out of 100,000 per year. Given the stats, a town of 26,000 is expected to have a case every 4 years, on average. Sorry if it sounds too scientific.
I know it’s so very hard to come to terms with. My wife has been sick since April. There hasn’t been a day that I didn’t think… Why Her???
I feel your pain.
Hugs,
EliAny PCB’s dump sites located in this small town? PCB’s such as Chromium 6 which was used in Green Army paint when my husband Tom was in the Army causes a high rate of cancer, some 40-60 years after being exposed to it. In some cases it manifests itself earlier.
Did the two men ever work at the same place? If so, what type of job? Could they both have been exposed to a cancerous chemical?
In my ‘research stage’ there was a small town in which residents all where getting cholandiocarcinoma because of a toxic waste dump. Don’t remember all the details – it was a small town in some rather remote area in the U.S.
You and I are in the same state of blurryness! I lost Tom on 11/20/2011 and still feel like I’m in a dream – I’m back to work now and living all alone for the first time in my life. Nights are so lonely and empty.
Hugs and hang in there!
Margaret
(Widow of Thomas G. Lepp who passed away from Cholangiocarcinoma after a three year 8 month battle)
It has been just one long week since my husband’s passing and I just now starting to get through the “blur”.
After my husband’s obituary was posted in our town of 26,000 a girl that I graduated high school reached out to me. Her husband (who graduated with my husband and grew up in same neighborhood) has succumbed to this horrific cancer at age 37, my husband was 47.
If this cancer is so rare 1 or 2 out of 200,000, how does 2 young beautiful men out of 26,000 get this cancer?????
any thoughts?
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