February 22, 2009 at 6:13 pm #25761devoncatParticipant
I have never looked at my scans, dont want the knowledge and questions. My husband is translating my records and reading those was hair raising enough. I admire your courage.
Best of luck at the oncologists. I am hoping for the best.
KRisFebruary 22, 2009 at 5:47 pm #25760sambamanMember
All my best wishes for appointment with the oncologist, I have my next CT etc on Wednesday and completely share your view that the waiting around is the worst part.
TomFebruary 22, 2009 at 5:31 pm #25759
Hi David. Best we don’t second guess but I am crossing everything that can be crossed for you. The waiting is another grueling part of this whole nightmare. We will keep thinking good thoughts.February 22, 2009 at 5:09 pm #25758
Well, I had my PET/CT Scan on Thursday. Of course they won’t tell you anything since they are the doctors. I asked for a CD and they gave one to me. I have learned that anytime you get a CT/MRI/PET, ask for a CD. You can burn extra copies on your computer to give to all your docutors plus you should always keep a copy for your records. Anyway, we brought the CD home and put it in our computer. I have so many hot spots, we aren’t sure what is normal and what is not. Most of the spots seem to be around my kidneys. If that is the case then the cancer has spread. We looked on the Internet and saw normal and abnormal pictures that look like mine. Our daughter in law is a radiology tech and she looked at them and said she wasn’t sure. She has seen the same of normal and abnormal pictures like mine. I see the oncologist on Wednesday. The wait is alone is killing me. So many things run through your head. I hope its just Gods way to tell me everything is in his hands and that I will find out in due time. I will let you all know the outcome of the doctor’s visit. Take careFebruary 14, 2009 at 4:45 am #25757marionsModerator
David….crossing my fingers and toes for good results coming your way.
MarionFebruary 14, 2009 at 4:36 am #25756glightfootMember
I hope your treatment delay will give your more time to feel better, David. Please keep us posted regarding the Pet/CT scan.
GFebruary 14, 2009 at 2:52 am #25755
I went for my chemo treatment today but couldn’t get it. All my blood levels were to low again. Next Thursday is the big day. I have my PET/CT Scan. As it gets closer, my thoughts are “what if the Radiologist is right and the cancer has come back?” I tell my family not to think about it. Stay positive. I wish I could take my own advice.
I will let everyone know what the outcome of the scan isFebruary 7, 2009 at 2:14 am #25754
What a week. Seems like all the non side effects are starting to come around now that I am into my second half of treatment. Last weekend I had so much energy in the morning and early afternoons but my 3:00 PM I crashed. Starting Monday I had such a hard time getting started. It lasted all week. Tuesday I started to feel sick. When I got home from work, I couldn’t stop getting sick to my stomach. That lasted through the night. Wednesday was a recoup day. Thursday, I felt a little better and today I feel fine. Just in time for treatment. Blood work was good enough to get a treatment today. One more treatment next week and I am finished with round 4. I am scheduled to get my PET/CT scan on February 19 which is my normal week off. My follow-up with the Oncologist is on February 25. Hopefully that will be my last visit official visit and I will just need the follow-ups.
Because of the potential bad news about the cancer coming back, my wife and I decided that she should get her rotary cuff surgery done while I am able to take care of her. She went in yesterday. For the next 12 weeks I will be her caregiver and mine. I can only pray I will be as good as she was to me.
God will only give us what we can handle. I hope I can live up to his expectations of me. Our prayers are with you all. Thanks for being here. This is really helping me cope.January 31, 2009 at 12:10 pm #25753jcleggMember
We will wish for good results from the pet scan. As for explaining feelings – this is the place to do it. I don’t know what I would have done w/o this site, both as a source of information, and a place to express my feelings. This, along with our blog, allowed me to do just that. I guess whether we are caregivers or patients, we all need to express ourselves. I don’t know what I would have done w/o our blog, as it allowed me to collect my thoughts, leave a record of our trials and tribulations, and to express myself. I found it to be SO therapeutic.
Joyce C.January 31, 2009 at 2:45 am #25752marionsModerator
David…..Our surgeon made sure to look at the scans personally, before voicing his opinion in re: to the interpretations of the findings. Sounds as if that is what your onoclogist and surgeon are doing, also. Glad to hear that your blood count was good. You might have noticed on this board everyone expresses feelings whichever way they come therefore, no apologies are needed. Just say whatever you need to say. We welcome it. Wishing for a “good” day coming your way.
MarionJanuary 31, 2009 at 2:19 am #25751
A good/not so good day is not bad. Bad is not good! PET Scans are good. Cancer is “what if” but we have to live with HOPE. Without hope we can’t cure Cancer. Good luck on the PET Scan, hope you pass with flying colors.January 31, 2009 at 1:56 am #25750
We met with the oncologist today to develop a new plan. The plan is for me to stay on the 3 weeks on, 1 week of with chemo. He dialed it down to 1200 instead of the 1400 I was getting. While talking to the doctor, he read the radiologist report. The Radiologist thinks he sees something in my lower abdomen. Could be a mass, not sure. The funny thing is if you can say that is my surgeon and oncologist said they looked at the report and they are discounting the radiologist’s report. I will have a PET scan after this round of chemo. The good news was that my blood count was good and I was able to get my treatment today. Today is just one of those good/not so good days. Even though I have everything in order for my family, today’s news makes me think “what if” Sorry for going on about how I feel. I never kept a journal and this is a good place for me to explain how I feel and what is going on. Thanks for being hereJanuary 26, 2009 at 9:47 pm #25749suzannegmMember
I agree with G. Ask them for a Neupogen injection to boost your WBC count. It works like a charm for me. I am able to give them to myself about once a month. It goes in the thigh, no problem so far for me.
Ports are great! Make sure to use it even on the days when you just have labs, no chemo. The veins need to stay flexible for as long as possible.
Keep on fighting! My doctors have NEVER told me I only had a certain amount of time left. I was diagnosed in July 2008, and I’m still here. For sure some days are really hard, for me the psychological hurdles are the toughest. But I wake up everyday and try to be “me”, which is all I know to do.
As Lainy said, stay strong.January 25, 2009 at 10:30 pm #25748
Yes, David, ATTITUDE is everything! And you are doing a great job in that department. Hope things ease up for you and that you continue to be the boss! Keep your spirits up, stay strong and keep us posted.January 25, 2009 at 9:47 pm #25747ron-smithMember
Just wanted to say that my experience with gemzar is very similar to your’s. First few weeks were fine but then the doctors and nurses were finding it almost impossible to find a vein. So 3 weeks ago I had a Hickman line put in and this makes a huge difference. Just have to get it flushed and re-dressed every week. I am also on a 3 week on 1 week off cycle but it’s a toss up if they give me the third round because my platelet number is too low. Side effects are not too bad. I can count on feeling nauseous for a couple of days following treatment and my appetite is not as good as it normally is for these days. The normal week off is like being on vacation; I really look forward to it.
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